Hi, I have finished 6 sessions if R chop. I had no real problems except for feeling nausious after the 3rd and subsequent sessions. The problem I have now started a week ago - 3 weeks after the last session. I am getting quite severe pains in my right leg, nowhere else, jyst the right leg. The pain feels like it is inside the shin bone and travels up into the thigh muscles. It is worse at night time. I take 10mg ×2 of oxycodone slow release It does almost nothing to stop the pain. Paracetamol works better. I was just wondering if anyone has had the same experience.
Hi and welcome to the Online Community but always sorry to see folks finding us.
So I had a different type of NHL, 6 cycles of treatment rather the same as R-CHOP but also two Stem Cell Transplants and yes I did have leg pains rather like how you described in both legs but also a lot of arm pain.
My team told me that it was very bad muscle wastage and would take time to build back up. So It did take strong pain meds and a regular supervised exercise class with a trained cancer fitness instructor at my local Maggie's Centre to get the back of it. I would say for me it was about 18 months to get clear from it.
I am sure that some of the others will be along with their experiences
All the best..
Hi Concon and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
This post is over 4 years old so the members may not be active on the community now.
Sorry to hear that you are still suffering treatment ‘left overs’ this can happen even a few years out from treatment. I would say it took a good few years for me to say that the various pains I had were starting to go.
What is your GP or Consultant saying?…. as you can see my clinical team told me that my pains were are down to very bad muscle wastage and nerve damage and it would take time to build build my muscles back up and at the same time this would help the nerve damage.
My consultant arranged physiotherapy for me so I was having 2-3 sessions a week for about 4 months then went to a regular supervised exercise class with a trained cancer fitness instructor at my local Maggie's Centre to get the back of it.
I did take strong pain meds for a good three years but I am now over 3 year past this and doing great.
