Hi 3 months ago after my own investigations I have had it confirmed I have early on set CLL . Am still waiting to see a consultant as they have said I am only classed as routine. Have had s blood test as white cell count and lymphocytes have increased but not sure what is class as high in terms of numbers , can anyone help please. Thanks
Hi and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our blood cancer groups.
I don’t have CLL but was diagnosed way back in 1999 with a rare incurable but treatable type of skin NHL Stage 4a and although my blood cancer ‘type’ is different I have a good understand of this journey.
I don’t know if high counts are a thing with CLL but low counts are always a problem in blood cancers - the normal ranges are:
White Blood Counts 4.0 to 10.0
Lymphocytes 1.9 to 3.0
CLL and SLL are different forms of the same illness. They are often grouped together as a type of slow-growing (low-grade or indolent) non-Hodgkin lymphoma so do also check out Lymphoma Action, a small UK Lymphoma Specific Charity who have lots of information, videos and run regular regional online Lymphoma support groups and indeed a great Lymphoma Buddy Service.
Always around to chat.
Cheers thank you for the advice , I think as far as I can understand high counts are a problem for me with CLL. Will check out the action groups your have mentioned . Good to know there's support out there
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