New here: from CIN3 to 1A2 to 1B2 journey

I forgot to say that my cancer is adenocarcinoma, hence why they are recommending to remove my ovaries.

I can't imagine how u r feeling. But chatting either here or else where is really good. Dont bottle it up! I am happy to chat if u want or need. Not that I know much. I had 2nd procedure on tues, they said they think they have removed it all. So fingers crossed. 

Unfortunately there are no right or wrong answers. I have a partner but I can't talk to him as he has alot going on too. But we do all need to have someone. I've been referred for counselling.  . . Because I do have other problems too. 

Try and get as much info as you can . . But from places like here not Internet. Here if u want to talk xx

Hi Kamuka1e94e2 and welcome to our group.

Thank you for sharing your story-you’ve had a lot to process in the last few months.

I’m afraid I don’t have any similar experience to share as I was post menopausal at diagnosis, and surgery wasn’t immediately possible due to the stage of my cancer, but I hope there might be others in the group who can relate. I too had adenocarcinoma. 

It’s positive that there is no evidence of LVSI, but I can appreciate your concern about micro metastasis, so the MDT meeting will hopefully give you a plan soon, and advise if further treatment post surgery might be recommended. I can’t imagine how difficult it must have been to make decisions about your fertility, but I believe that we make the correct choices for ourselves based on our own individual situations and the advice of our doctors, so I hope it’s something you can come to terms with in time.

Please let us know how things go, and I wish you well with your upcoming surgery.

Sarah xx

Hi again Jane75d4408e 

I hope your procedure went smoothly on Tuesday and that your results  will confirm everything has been successfully removed.

The group is always here for any support if you need it.

Sarah xx

Hello, I’m sorry to hear of your situation. As horrible as it is, you will find this group is extremely helpful and supportive.

I have been through a similar experience as yourself. I was initially diagnosed with adenocarcinoma 1A2, and scheduled to have a hysterectomy. This then changed after my scan results came back and was then diagnosed with I was actually 1B3. My pre-assessment appointment was cancelled and my treatment plan changed to chemotherapy & radiotherap/brachytherapy.

It was quite stressful at the time because I had geared myself up to have an op and then had to get my head around changing direction at last minute. They advised it was better this way, as if I had a hysterectomy, there would be a high chance I would still have needed chemo radiation afterwords.

I’m in my mid 30’s, and was also offered the choice to have my eggs removed, however I decided not to. It was the right choice for me, however I would suggest that if you aren’t sure, there’s still time to contact them to have this done.

My treatment has been successful, and I’ve had two follow up appointments which have been clear. In hindsight, I’m ok with not having a hysterectomy.

whatever way they decide, I’m sure it will be a well informed decision and will be the best course of treatment for you. 
Happy to chat more about my experience if it helps ease your mind in any way.

Sara :)

Hi Jane,

Thanks so much for your message.

I am glad the procedure went well and I hope the recovery is being manageable. Please try to keep a positive mindset, your doctors are working with you to get you through this and for what you said they sound confident about the outcome of your procedure.

I’m really hoping for the results to come back clear so you can have some peace of mind and start the emotional recovery too. 

I’m sorry to hear you’ve had so much on your plate on top of the diagnosis and treatment, but it’s great that you reached out for counselling. I have found that even with support from family and friends, having someone external and objective really helps to process what you’re going through and give you tools to deal with the low moments.

I’m on the waiting list for counselling too. MacMillan support line has been amazing, specially at the beginning when everything was so scary and confusing. I have also reached out to other cancer charities and plan to attend support groups once the surgery is over. Have you considered that too? 

I’m always here if you want to talk. Please let us know how you’re getting on.

Carmen xx

Hi Sarah,

Thanks for your message. 
You sound like you have made it through a more advanced diagnosis experience and that’s very encouraging. Thank you for being here supporting others.

I received the second MDT opinion yesterday and the team agrees with the latest diagnosis and recommended treatment, which has put my mind at ease in that regard.

It is so difficult and mentally exhausting to take such huge life decisions in such short period of time. I don’t know what is waiting for me post-surgery, but hearing from so many people going through similar experiences and being able to talk here helps more than I can say.

Carmen xx

Hi Carmen

It’s good to have the decision finalised now for you to be able to move forward, and I’m glad you are finding it helpful to read other posts in the group-I hope you can get a lot of encouragement from the positive stories here.

My cancer was stage 2b, so locally advanced, which made surgery not feasible and I had chemoradiation as my first line of treatment. If you click on my name, my story is there, and you may wish to choose to update your own profile as it’s helpful for others to read.

My cancer unfortunately did recur after successful treatment, but nonetheless my story is a positive one as I am now considered cured from cervical cancer.

Sarah xx

Hi Sara,

Thanks so much for sharing your story.

I’m so sorry you had to go through all this at such young age. So glad to hear your treatment was successful. It shows that was the right approach for your case.

It would be great if you could share how you have been handling your follow-up appointments. I wonder if there will come a day when I will not think about cancer or feel that fear.

I have come to terms with the surgery and accepted the infertility. I really appreciate that my medical team would have supported me if I had decided to freeze my eggs, but I just couldn’t see myself putting my body through such hormonal changes right before going into surgical menopause, and delaying the surgery on top of that.

The early menopause is a separate challenge, and I know it will take me some time to fully come to terms with it.

At this point, I just want to have the surgery done and move out of this waiting limbo. I think the hardest part of this whole experience is the uncertainty and the emotional exhaustion from waiting for results.

Were your ovaries affected by the treatment and if so, how are you coping with the menopause symptoms (only if you are happy to share it of course). Did they offer you HRT?

Carmen xx