Why is waiting so hard?

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Hi All,

I had an examination and biopsies taken after my GP referred me to colposcopy due to the appearance of my cervix being consistent with cancer (this was during an appt to fit a coil a- which didn’t go ahead).  This was through the urgent pathway.  I did get an appointment within two weeks, but it was cancelled and rescheduled for what was three weeks from my GPs referral.

On the day of my colposcopy I wasn’t shown my cervix on the screen but the consultant did say it looked highly suspicious.  She took multiple biopsies and said she would call me as soon as she had the results back and within the two-week wait pathway.  I’m still waiting for that and it is now two weeks and two days.  I left a voicemail with the gynaecology secretary dept yesterday and I’ve not been called back yet and tried today and it just rings out.  The letter to my GP is on the NHS app which says my cervix is friable, has calcification and some area of necrosis.  She also says the tissue does look highly suspicious for a cervical cancer.

I’m so filled with anxiety and the wait is unbearable with my emotions up and down. Has anyone else had to wait past the two week timeframe before?  Is it normal to be left waiting this long?

For reference: Ive had years of excessive menstrual bleeding (constant), severe iron deficienct anemia, back and pelvis pain… but linked to pre-existing gynae issues… but maybe it is cancer?

Any words of advice or wisdom from those who have had to go through this awful wait?

  • Hi  and welcome to our group.

    I’m sorry you don’t have your results back yet, but any biopsies are sent to a pathology lab for analysis, so any delay in getting the results back is usually due to the volume of samples being dealt with at the lab. 

    I had to wait 3 weeks from my urgent referral done but the gp and then waited a week for my results, but my gynaecologist obviously was pretty certain that I had cancer, which I did.

    Waiting is horrible, I know, but unfortunately is part and parcel of the diagnostic process and there can be waiting at all stages. When your results come back to the consultant, they then have to go to an MDT meeting (Multi Disciplinary Team) where all the medical professionals review them and decide what action is needed. Then I would expect you to be told what’s next. 

    There isn’t anything which can hurry the process, so it’s just a matter of doing everything you can to distract yourself and keep busy. But it’s very difficult, so I do understand what a tough time this is. Things feel easier for most of us when we have a confirmed diagnosis, and a treatment plan if it’s cancer. 

    If you do have a cancer diagnosis, we have a lot of experience in the group of different stages and treatments, so would be here to help support you through it. I hope you don’t have too much longer to wait to find out more.

    Sarah xx


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