recent diagnosis

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hi i am new here this is my first post i just feel like i am on a roller coaster that slows down and you think your getting off then the ride starts going again . i was told last friday my diagnosis and had a pet scan today scared about what is next

  • hi all met my oncologist last thursday .just received a phonecall to go for planning scan tomorrow .i have read all the literature i have been given but my mind has gone blank and cant remember a bloody thing . 

  • Hi  

    Do you have any questions you’d like to ask here for those of us have been through treatment? 

    It can be a good idea to write down notes of any questions as you go along and then they’re ready to ask at any appointment. Some might be answered at your planning scan, some can be answered by your consultant, and we can help with things we’ve gone through ourselves.

    I’m presuming you are not going through the chemo combo treatment prior to chemoradiation which uses a different chemo? It can be helpful for you and the group to update your profile so we know what your diagnosis is, staging and plan so that we don’t need to ask questions of you, and can see at a glance where you’re at.

    Saeah xx


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  • i am having radiotherapy and a chemotherapy  called cisplatin and after the radiotherapy and chemotherapy i will be having brachytherapy

  • Exactly the same as my plan at diagnosis for stage 2b. Let us know if you need to ask anything in the group and we’ll try to help if we can.

    Sarah xx


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  • hi all

    just a update i am starting my treatment on tuesday chemotherapy for 6 hours then radiotherapy after it then radiotherapy every day get weekends off .

  • I hope your treatment plan goes smoothly for you, and make sure you let your team know how you’re feeling as you go along. They can help with any side effects. 

    Sarah xx


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  • hi all started chemotherapy and radiotherapy on the 6th of may bloods results last week showed my glucose was high at 13.4 and luckily got to have treatment again this week but my blood on my test machine for my diabetes have been really erratic this week just trying to find out has this been a problem for anyone else as i have been told that if it goes above 15 they will not issue chemo for following week please has anybody had this problem