Hello
I was told I have cervical cancer on 5th April after a colposcopy. Looking at the letter the consultant wrote to my GP, it's squamous cell and he's put grade 1b2 with ?? I guess he needs to see the scan results.
I had an MRI on Easter Monday and a PET scan last week so now I'm just waiting to be called in yo find out what treatment I'll have.
I've had low back pain for the last few months and realy bad tiredness - I actually wondered if I had chronic fatigue. I haven't seen tiredness mentioned as a symptom of cervical cancer, does anyone else experience this?
I've been pretty calm for the most part but I've been bleeding since Saturday with worse back ache and low abdominal cramping. It's hard work stopping my mind racing ahead and worrying that the cancer is bigger than they thought. Meditation helps, and breathing exercises but I just want to know when my appointment will be. And then I don't, if that makes sense! I feel like I got on the wrong train, I am speeding towards a place I don't want to go and I can't get off!
Hi M1ssy
I didn’t have a headache after either of my surgeries, so sorry, can’t help with that. Anaesthesia effects can cause a headache after the op but I wouldn’t have thought several days out? Are you drinking enough water? Usually any headaches for me are caused by dehydration.
Sarah xx
I forget that it’s easy for me to see my output since it goes into a bag! The colour of your wee will usually show if you’re dehydrated-you’re aiming for wee to be as light as possible in colour and the darker it is, the more you need to drink.
When I came out of hospital after my failed hysterectomy I did get out of bed lots of times through the day and go downstairs and shuffle about, just to get moving. I was conscious too of the increased risk of clots from being immobile, since I’d had an embolism before.
After my exenteration it was much harder to get up and move about, but I still managed it every day, although very slowly, and just to go downstairs or sit just outside the patio doors. I didn’t get lymphoedema after either surgery.
Sarah xx
Hello!
Figured out it was omeprazole causing the headaches. One mystery solved! On the whole I'm OK, although my abdomen is v sore and bloated still. I guess it is early days, and I may have been overd
ng things in my haste to recover. My abdomen was throbbing after a walk up the road yesterday. It wasn't even very far!
Blimey Sarah, you've really been through it, haven't you? I had to Google to find out what exenteration means. 
Bubbsy80 How is your radiation treatment going? Are you nearly at the end now? I hope it's all going OK.
Well I've had the call with the histology results and it's good news... clear margins and no more treatment! I'm feeling blessed and so thankful. Now I can just concentrate on the recovery. Hubby promised me a holiday once I'm back on my feet, so I'm going to hold him to that!
Sending thanks to you both for being here when I've needed someone. I hope I can pay it forward for other warrior women who face this in future.
Rachel
X
Oh god didnt think of the imeprozole, awful stuff!
Glad to hear you are doing ok, it is a slow process so just take your time. A short walk is good but listen to your body, it will tell you when to rest.
I found even the shortest walks took it right out if me and made my scar and stomach feel so heavy, so id rest more inbetween short walks if inwere you, i didnt walk everyday but just moved more around the house when i was tired or feeling particularly sore.
Thats amazing news regarding your results, no more treatment is fabulous news, must make you feel so much better and more focused on healing now and you hopefully will have a holiday to look forward to 
️ I’ve now booked one for september which i cant wait for nice to have something good to aim for 
My radiotheraphy is going well thank you, side effects have definately kicked in now, fatigue, quite uncomfortable internally and around my scar and its is now effecting my bowels…however it is all manageable and i just take it a day at a time. Im feeling a lot better than i expected and the radiologhy staff are amazing so i cant complain . I finish my last treatment next wed 31st then i get to finally ring that bell 
Here anytime, i find it very therapeutic to come on here and either get advice or try to give advice. Shows me that im not on my own in all this
All our experiences can help in advising others so im sure you can definately help others in the future ️
Wishing you well ️
Kath x
Hi M1ssy Rachel
So pleased to see your great histology results! Clear margins are the holy grail of surgery and no more treatment will be a real relief for you-a holiday will definitely be something to look forward to, but don’t try and push yourself too hard right now to recover quickly. You need to give yourself time.
There are different types of exenteration surgery and the details of mine are on my profile if you click on my name. Not many people have heard of it unless they have to go through it, but I consider myself lucky to have been able to have it.
Hope you’ll be able to stick around to help any new ladies facing surgery-I’m sure others will gain from your experience.
Sarah xx
You can put your story into your profile too if you’d like to. It’s handy for others to read experiences and be able to connect with someone going through something similar. Not everyone completes this but it’s very useful for others to know what brought you to the community and what treatment you’ve had.
I’m a firm believer in trying to remain as positive as possible as I think it makes things easier to cope with, and just getting on with things one step at a time. We can amaze ourselves with our own strength.
Sarah xx
