Does it get any easier after treatment?

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It's been 6 months since I finished treatment and I've had two follow-up appointments so far. At my most recent one, there was some activity seen in the lining of my womb. My doctors think it may be related to starting HRT, but they've recommended another MRI in 3 months' time. I didn't expect the follow-ups to be so difficult. I get borderline panic attacks sitting outside the consultant's office waiting to be called in. During treatment, I think I compartmentalised everything and just focused on getting through the next chemo or radiotherapy session. Now that it's over, I feel like the emotional impact has finally caught up.

I went straight back to work full-time and didn't even ask for a phased return. The only people who know what happened are HR and my line manager so I can attend appointments. I thought it was better that way because I didn't really want to relive it by telling people what happened to me. I keep myself busy but sometimes it feels isolating listening to colleagues talking about holidays, children and normal life while carrying around this huge baggage.

Physically, I don't feel like I've made much progress either. I gained around 20% of my body weight during treatment and haven't managed to lose it. The steroid moon face has gone, but I'm still uncomfortable in my clothes and reluctant to buy new ones because it feels like accepting this is how I'll stay. One thing I am grateful for is that I kept most of my hair using the Paxman cold cap. I shed quite a lot after treatment and my hair has thinned evenly all over, but no bald patches. Length wise, it has grown already more than an inch longer than it was at the end of treatment.

The thing I struggle with most is feeling stuck between being a patient and being myself again. And then there's the infertility, which still makes me incredibly sad when I allow myself to think about it.

Does the anxiety and sadness get easier? And when did you start feeling like yourself again?

  • i think everyone is different but i want to let you know that what your feeling and experiencing completely resonates with some of my experiences, you have been through a really distressing time, one you were not expecting and had no chance to prepare for, and because of the seriousness of your diagnosis had very little agency or choice to make when it came to your treatment. You've shared that your treatment has been successful which is really great news, but as i know the 3 monthly surveillance checks when there is a risk of re-occurrence are something that hangs over you and does not really allow you to feel the relief that treatment is over and was successful. I remember feeling anxious before during and after (whilst waiting for the results ie bloods/scans) to come back and each time it was with a sense of dread and fear that the cancer had returned. I had had my daughter at the time of treatment but early menopause was hard, i cant imagine how that must feel given your young age. Treatment has side effects, and the changes to your body and the reshaping of your identity are really big, upsetting things to come to terms with and process. I too went back to work within weeks of completing chemo-radiation and it is something i regret, i was so anxious and needed to where a mask all the time, it did not help my recovery and stopped me having the time and space emotionally to start processing the shock of diagnosis and treatment and to start coming to terms with my altered future.

    You've done so so well, but now might be the time to think about what other types of support might help you to start moving forward whilst living with the threat of re-occurrence - given you have returned to work it may be that your employer has a brief counselling offer that you can access independently of your manager though an employer assistance program? i accessed 6 free telephone counselling sessions via work which gave me some strategies to help cope with uncertainty or to explore if your oncology team have a psychology service you could access?

    Looking back id say my recovery has been two steps forward one step back, i have long periods of feeling great but have found that threat of re-occurrence and some of the changes to my body due to radiation damage and my 'ableness' have taken time for me to process, accept and adapt too

    The biggest lesson i have learnt is self compassion, life has its ups and downs and feeling anxious or sad or angry is understandable, it important to allow yourself to feel emotions and access support and help from others to support you to soothe, feel better and look to the future