They said my hair would go…

I only had Cisplatin and was told I wouldn’t lose my hair, which I didn’t. But this is cautionary tale for others undergoing a different protocol nonetheless so thank you for sharing this.

Sarah xx

Thanks Sarah, I should say it was carboplatin and paclitaxel they thought would cause it. I guess I wanted to give people hope as well that although it’s not nice, and can be even traumatic for some people, good things can come out of bad x

This combo of drugs is known to cause hair loss and that must be so hard, as hair can be such an important part of someone’s identity. 

I’m so pleased you’ve had good results from the treatment, and it’s amazing you’ve ended up with a completely different look!

Sarah xx

I didn’t find it as difficult as I thought, but I wonder if anyone else has had a similar experience, it would be good to hear. Or is there anyone who is dreading losing it?

Hi I started losing my hair within 2 weeks of treatment of Paclitaxel and carboplatin. I am lucky that it wasn't as unsettling as I thought and I developed a good relationship with my wigs. Now my hair is growing in I have a pixie like style and only wear a wig on special occasions. I still look forward to longer hair as I feel it suits me better

I only cut my hair to the nape of my neck to manage under wigs better I still have about 35% of my hair with no patches it’s just very thin all over like toddler hair… it’s been 2 week since I finished carboplatin and pacitaxol and it’s already growing back also because I’ve not been to a hair salon for a while my grey roots are bad so to me my hair looks a mess… so until I’m allowed to colour it… I’ll still be wearing a wig. 

It’s so good to hear you didn’t find I t as unsettling as you thought and you like your wigs. They look so realistic nowadays. Someone put me onto Temu which I had my doubts about but I ordered one and it was amazing, so realistic. I had to trim it a little around the front but wore a headband over that bit. It had an inner hair net and was adjustable and only £15! 

It’s great you can wear wigs in the meantime but your hair will be back before you know it! :)

I like it, au naturale under your wigs, saving money and time not having to go to the salon! :)

Hi, 

I didn’t loose my hair whilst on cisplatin. Now I’m on carboplatin and paclitaxel. Hair started coming out a couple of weeks after the first cycle. I did not want to cold cap, brr . Before it started coming out, my scalp became very sore. I had chin length hair. I kept wondering when to shave it off, but as more and more hair came out and bald patches started appearing, I realised I would have to get it shaved. My sister did it down to a No 2.

I tried wigs, but just can’t get on with them, too itchy and uncomfortable. So I just stick with soft hats. 

Hi 

I had the carboplatin and pactlixatel at the beginning of my treatment . My hair was passed my shoulder but I had it cut fairly short so it would have been better for wig fitting etc . I did do the cold cap but more so because I have young grandchildren and didn’t want them to be shocked etc . My daughter had cancer and she lost all her hair and I know how that affected her . I found the cold cap doable but it did put longer stay on the day of chemo . I was lucky that it was effective and only lost maybe 10 percent of my hair . Then on to cisplatin that does not normally cause hair loss in majority of people but I could only do 3 out of 6 treatment due to bloods . To everyone whom is doing treatment for whatever cancer they have be strong good luck to you all and remember there is always people on here to listen to and help in many ways and thanks to all the online support from everyone . Best wishes to you all