When will I get results? Following treatment

HI Loulous,  I am so sorry that you find youself here but welcome and we have a lovely group of ladies who are always willing to help.

I am also a Stage 3c cervical cancer and I have just finished Chemo, 5 weeks Radiotherapy and two brachy with one to go next week.  I had an MRI scan just before I started the first brachytherapy and it showed an excellent response so far but it will be the (approx.) three month pet scan after all the treatment has finished that will give the best indication of how the treatment has worked.  More waiting and agonising but that's the name of this game.  When do you start your treatment?  I wish you all the best and we will all be rooting for you.  Keep us updated with your progress during treatment or just to ask anything.  We are all in this together and support each other throughout xxx

Hi

i have completed all the treatments, last one was six weeks ago. I also had a scan that showed good progress (before brachytherapy started) which was really good to hear.

I was so glad to be done with it all I didn’t really ask next steps other than knowing I have a check up in two weeks. Realistically then I guess I have another six weeks after the appointment before I am closer to knowing results.

good luck with your brachytherapy next week and thanks for responding ️️

Oh cool!  Well done.. Did you get through it all ok?  I think for me they said 6 - 8 weeks after treatment has finished for the Pet scan.  Just hope I don't spend the whole of that fretting about i! It sounds like you should be pretty close to getting a scan.  Maybe they'll arrange it at the check up in two weeks.  I hope you don't have to wait for too long xxx

I am a six week post treatment today!

I had some bad side effects with the cisplatin, made me deaf, so they switched it and then it was all ok.  Bad radiation cystitis too but that went about two weeks post treatment. Now have the horrid dilaters to tackle How are you coping?

Hi Loulou and welcome to our group!

Well done on getting through all your treatment…now more waiting! I had a check up 6 weeks after treatment, which was a chat and physical check and then had an MRI scan, actually not quite 3 months after treatment finished. Then a very long wait for my results.

There seems to be slight variations in the exact timing of follow ups, and indeed types of scan. In my experience, this was the only post treatment scan, and all my other checks at 3 monthly intervals were physical check ups. I was told no more scans would happen unless I had symptoms of recurrence. 

The dilators are not particularly pleasant, but I do recommend persevering with them to avoid any issues with closing up which can make future examinations really difficult. Hope you’re otherwise recovering well. 

We have a lovely group of ladies here, all very supportive and encouraging and I’m sure you’ll be able to offer lots of useful advice based on your experiences. Nice to have you with us!

Sarah xx

Hi 

So helpful thank you, I need to just chill and wait now - maybe the hardest part.

I hope you are well now and recovered ️

lou x

Hi Lou

My wait for the actual scan results seemed ridiculously long so I hope you don’t have the same. It’s always an agonising time when scanxiety kicks in. 

I am doing fine thank you-I’m 3.5 years out from my original diagnosis now. Seems hard to believe! 

Sarah xx

I'm fine when I remember to take the tablets for the runnies but I am finding the after effects of the brachy pretty harsh.  Hopefully that will settle down when I am done with it.  Funny you say about the cisplatin making you deaf - I have really bad popping ears and have done since I started treatment.  Not always but definitely there a lot of the time!! I am not looking forward to the dreaded dilators.  We'll leave that one where it is for now .  Sorry to hear you had bad radiation cystitis but glad it sorted itself out. xxx

Hea Loulous. 

I am sorry to read of your diagnosis, however welcome to the group. 

I was given an indication that treatment was “shrinking the tumours significantly” at my first brachytherapy. 

From there i had a catch up with my oncologist about 6 weeks post treatment, this was just a chat about how I was, any after effects etc. 

My first scan was 12 weeks which was a MRI, the results of that were 2 weeks later. I’ve just had my second MRI on Monday and the results are due 28th of this month however I do plan on pestering around the 2 week mark to see if I can get any information. 

After my first scan results I was given an examination and was told this will be a pretty regular thing at any appointments. 

Wishing you all the best 

Jen 

xxx