Reassurance Cervical Adenocarcinoma 1A2/1B1 diagnosis

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Hello All,

I have been diagnosed with Adenocarcinoma the Dr has said it’s likely stage 1A2-stage 1B1 following MR scan and recommended hysterectomy as no plans for further children.

Background

I am 38 years old with 1 child and I have had clear smears until HPV detected 2022 and HPV with abnormal cells 2023. These were confirmed as glandular changes.

LLETZ procedure completed in nov 2023 which confirmed CIN3 which confused me as no glandular changes noted in biopsy histology (was advised this was rechecked and confirmed no glandular changes). My follow up smear July 2024 confirmed further glandular changes and further LLETZ needed. This confirmed cancerous cells and referred for MR scan last week.

MDT meeting advised hysterectomy although possible removal may have already occurred but due to infection and inflammation they couldn’t confirm for sure on MR scan and due to no preference for more children hysterectomy recommended.

Please can anyone advise if they have had a similar situation. I’m really worried things may have been missed and keep googling reoccurrence at stage 1b1 adenocarcinoma after hysterectomy and it’s frightening me.

Thank you xx

  • Hi Lynne  

    Thank you so much for sharing your experience. This has made me feel better xx

    Finger and Toes crossed I have no lymph node involvement - do they check this post surgery? and how long did you have to wait to confirm successful treatment?

    Thank you xx

  • Hi Chloe

    Yes they send all your removed "bits" off for analysis/histology. I don't know quite how they find out but my follow up appointment was just under 4 weeks after my surgery and the surgeon told me straight away the lymph nodes were negative. I gave him a massive hug!

    The surgeons and their teams are totally amazing. Please don't be afraid to ask them lots of questions. 

    Everything crossed for you, love.

    Xx

  • Thank you so much!

    I can imagine your relief when you were told, how amazing!

    I feel a lot better now I have some idea of what you have been through. I need to focus on your story Heart️ my little 4 year old keeps asking me why I’m sad as she love me so much so need to snap out of it. 

    Thank you again it means a lot xxx

  • hi Sarah thanks for your reply x i am already in the group and replied to a post by Serena77 a couple of weeks ago, we ‘chatted’ then! Thanks again x

  • Let us know how you get on! And there's nothing to snap out of, your feelings are important and shouldn't be dismissed, but remember you're not alone. Hopefully talking will help you to feel less anxious. Xxx

  • Hi  and welcome to our group.

    Thank you so much for sharing your positive story! I’m sure this will reassure other ladies and I hope that you’ll continue to contribute to the group-please feel free to reply to any threads or start your own.

    I’m glad you didn’t need any further treatment-you are right in that everything that is removed in any surgery is analysed in the lab to check if any further treatment is required.

    You should still be monitored with check ups to make sure all is good, but that normally doesn’t involve the need for any further scans unless you reported symptoms. It should be a chat to see how you are doing, an internal check and a feel around your abdomen and groin-very straightforward.

    Good to have you with us, and I hope your recovery is going well.

    Sarah xx


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  • Hi Chloe thanks for your message x i initially had a smear test as i had had a tiny post meno bleed, that came back high risk hpv and high grade cgin so i had a lletz the next day which came back 2 weeks later as adenocarcinoma and the gyno said he thought it was 1b1 so am going off that but had mri last monday so waiting to hear re that as the mdt should have met on thurs but i havent heard anything yet x the not knowing and thinking the worst is honestly torture, i’m just about functioning but dont really feel like myself anymore x trying to be pragmatic about everything but yeah its tough x i’ll keep in contact with you on this thread x take it easy xx

  • So sorry  my memory is terrible! But your profile shows that you haven’t yet joined any groups, so I’m thinking you’ve just been able to reply to existing posts but not actually made any posts of your own. 

    Sarah xx


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  • Thank you!

    Yes recovery is going well, I have a follow up appointment in 4 months then once a year for 5 years after that.

    Thanks for what you do, it must help people feel less isolated. X

  • Thank you so much! 

    xxx