Hi
ive posted before, you might have seen me. I have tomophobia which is fear of medical procedures.
I have been told I will need 4 sessions of brachytherapy over a week (Monday to Friday). They will get me in on Monday, do a spinal, then general, position the rods, wheel me to a scan to check and then wheel me to do the treatment and wheel me back to the ward until the next day. This will repeat every day for 4 days. They will let me out on the Friday or the Saturday. I asked my oncologist and my nurse and they have both said there is zero chance of this plan changing. It will be that and nothing else. I was hoping after my research and speaking to other women that I wouldn’t need it or would only need one day if it had gone. They have said this will absolutely not happen.
When I say I am terrified, I mean it sends me in to a panic attack terrified. I have never been an inpatient at hospital. I am completely and utterly petrified of it. I am terrified of being stuck paralysed in a hospital bed for an entire week. I won’t see my two small children for a week. That’s not even starting on my fears about side effects. How on earth am I going to do this, and come out without being completely traumatised?
Yes thanks Sarah
I have peripheral neuropathy in my hands which drives me crazy! Also, just had a biopsy done on my thyroid because of it being enlarged. I Have got a persistent cough which is another reason for the biopsy.
Well, you did ask lol x
I hope you are getting on ok?
I’m sorry to see you need something else investigated, but hopefully it will be nothing serious for you. The neuropathy must be very frustrating for you-luckily I haven’t had that.
I had a challenging year last year starting with a blocked bile duct which was horrible and led to gallbladder surgery in September. Luckily nothing to do with cancer! Then I had a breast abscess which again was not cancer related but involved being back and fore to the hospital over 3 months.
I hoped as the new year started everything was looking up but then I had a stroke in March! You couldn’t honestly make all this up.
However, I’m pleased to say I recovered very well with lots of help and hope I am fine now! I’m on medication but otherwise feel well and managed to get a holiday at the end of May. Hoping everything will go smoothly from now on.
Sarah xx
Sorry to hear you have had so much trauma Sarah. A stroke, after all you have been through, I feel lucky after hearing your news!! I do hope you have better health this year and onwards
Linda xxx
I had Cisplatin also and it was kind to me, they don’t expect you to lose your hair either with it which for me was a big fear and not because I am vane it’s because I didn’t want to scare my grandson.
I am terrified of the brachytherapy but I will push through as it is important. I hope you manage to do what you can with your phobia as no matter what people say, you cannot help a phobia.
Good luck so
Hi Sarah
You truly are an inspiration and helped me no end so I had to mention it.
Yes it’s the last hurdle (I hope but you never know) and it’s a week tomorrow. I am trying to put it at the back of mind but not easy.
Xx
Thanks Linda-I’m a very positive person generally, so I think that helps me deal with everything that comes my way.
Still, it would be nice to have a break for a while!
Sarah xx
Hi Spirit Wolf
Yes, I quite understand the thought will always be in your mind and it’s not easy to dismiss that but hopefully you can go into this last bit of treatment seeing it as the final step in blasting the cancer into oblivion!
Positive thinking had a huge impact on me going through everything I had to deal with in terms of treatment and surgery, and all of that is in the past now. You just need to get through the brachytherapy now and then you will be able to recover and move on with everything hopefully in the rear view mirror for you now too. Please let us know how you get on.
Sarah xx
I’m about to start cisplatin. I’m hoping it’s kind to me too. I managed the 6 weeks of paclitaxel and carboplatin fine and I cold capped to keep my hair because I also didn’t want to frighten my children. I’m having radiotherapy too although today (day 3) was a disaster because apparently my uterus is floppy. So that’s a nice addition to the list of things that are wrong with me :(
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