I was after some advice I was diagnosed stage 1b1 cancer went for the radical hysterectomy I was warned if the cancer had spread after they carried out their investgation they would stop the operation sew me back up... However they cancelled the op before they cut me open stating the cancer had spread and the radical hysterectomy was not viable and I needed radiotherapy. I was told they carried out an internal and the cancer was more extensive than they thought from this and this hadnt shown on the mri which I knew was a risk. my notes which I briefly eyed still. Under anatsetic and it noted ct scan.. Requires radical radiochemothearpy and that they wanted to review my pre op mri scan. Am I right in thinking a few things 1. They missed that it had spread on the mri. 2 it didn't show and has since spread more aggressive in the last 6 week since the Mri or 3 is this a secondary cancer and I have cancer elsewhere which was the primary which caused it to spread from elsewhere and would they test for this. They haven't told me. The new stage they keep saying its Concentrated and they optimistic they can sap it. And be clear of cancer. Without op but they have said that from no worries looks OK u b fine to cin3 to cancer to 1b1 and now. Possibly worse am struggling with the lack of clarity. The mdts are meeting to discuss this on 4th Oct am sure I find the ans then.. I justed wanted to knw if anyone else had been though this and what they had experienced and had to go through. Sharon
Hi misfit2021 and welcome to the Online Community Sharon. Unfortunately none of us here are medically trained but we do have a wealth of experience. I have read of some ladies having radiotherapy before a hysterectomy.
I would suggest you join us over in the Womb cancer group where you find a supportive group of ladies, including me, ready to offer support.
I think as soon as the MDT meet on Monday, they'll get back to you quickly with a treatment plan then things will be clearer. Womb cancer is slow growing and, if contained within the womb, might need little further treatment. I was stage 1A/grade1 but histology after op regraded me to stage 1B/ grade 3 serous.
It’s always helpful to others if you write a little something (or a lot) about yourself and your journey to date. You can enter it into your profile (click on your username and select “Profile”) It’s helpful to other members with a similar diagnosis who can then hopefully answer your questions. It also means that you don't have to keep repeating yourself. You can amend or update it at any time. If you’re not sure what to write, just click on my username.
If you want to ask any of us any questions please come back and do so. There's always someone around and we can offer a shoulder to cry on, a hand to hold or listen to a rant, we’re here for you.
It might also be a good idea to download this booklet Understanding Womb (Endometrial) Cancer. I found it invaluable on my journey.
Click on the link I’ve created to find out more information covering diagnosis and treatments for Womb cancer.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear. It's free to call on 0808 808 00 00 8am to 8pm, 7 days a week. Have a look to see what is available by Clicking here .
There is also an Ask an Expert section, but you should allow two working days for replies from our expert team.
Sending you welcoming hugs, B xx
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