Metastatic BC in the bones

  • 5 replies
  • 28 subscribers
  • 385 views

Hi Everyone

I was diagnosed almost 3 years ago with Metastatic breast cancer of the bones. I recently started Capecitabine as the previous treatment stopped working for me.  I feel very breathless recently on slightest exertion which is devastating for me. I used to go dancing a couple of nights a week  before this diagnosis.    I miss it so much but can't dance now due to fatigue and breathless.  I feel it is another part of me that I have lost to cancer!!! Your whole life changes gradually but when you look back to before cancer it is bittersweet.  I wished I had danced more and did more when I was well and able.  Its almostv3 years now of drug therapy, radiotherapy and now chemotherapy drug with its annoying side effects.

I am tired of all the tablets etc controlling my life. Normally I am very positive but dont feel it atm. I miss working and being normal. Being able to plan a day out without the guilt of worrying will I be well enough etc. I miss me, who I was before all this!!!

Sorry for the rant. I do realise how fortunate I am to be as well as I am and I have very supportive family and partner. 

  • Hi LadyK26,  this really resonated with me.  I was diagnosed with metastatic breast cancer with bone mets two years ago.  The other night I wanted to give in.  I had stomach pain for three weeks, felt so nauseous and in pain.  Looking at the future with hospital, meds, pain etc looked bleak.  Yesterday however I felt much better.  I am normally very positive as my oncologist said that your body follows your mind.  I am determined to live for  long time and have a happy life.  I think just writing it down and ranting makes you feel better, I did.  So the grey clouds have now passed and the sun is shining again.  I do still miss the old me though.  We have a lovely forum on here called Living with incurable cancer - patients only and it is so helpful for me to chat to everyone on there.  It's not depressing as we chat about gardens, hobbies, holidays etc.  Maybe you could join our chat, you would be very welcome.

    Lee xx

  • Lee, thank you for your reply. Its good that you understand me. I will join that forum. If I can find it lol. I am not great on navigating these sites. 

  • Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Hi thank you for reaching out I appreciate it as I am new to this forum. I am not sure exactly how it work's.   Can I phone the support line and speak with you or another volunteer with similar diagnosis as mine? Sorry this is all so new to me. 

  • Hi  

    The forum encourages members to respond to each other’s posts, so you get responses from people in a similar situation. Over on the living with incurable cancer forum, there are threads where people post about things other than their cancer - gardens, music etc. As a Community Champion I am a volunteer and try to make people feel welcome on the site, but we are not set up as volunteers to provide telephone support to others. The phone number below connects to our help lines where we have paid staff - nurses and information advisers - who can respond. If you are looking to speak to someone going through something similar, the Breast Cancer Now charity has a service where it tries to put people in touch with another patient in a similar circumstance. I hope this helps. 

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission