Drug trial

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Hi everyone with secondary, has anyone been on a drug trial  that they are finding hard to deal with the side effects?  I am now on round 9 and its working ! My cancer has stopped growing and inactive since i started. Which is good Blush i have it in left lung with plural effusion, ribs, spine , lymph nodes in chest and nodes behind liver and kidney. So it was this or chemo tablets next line of treatment on NHS . I have the new drug every 3 weeks and I’m ill for a week or longer and my hair is starting to thin now Weary . I haven’t got many options left now !  Just wondering if anyone else been through this . Thanks Lisa .

  • Hi  

    It’s fantastic to hear that your trial drugs are controlling your cancer. It’s a pity it makes you feel rough for part of each cycle but that seems to be the way with many of these treatments. I hope it continues to work for you. With metastatic tnbc my future options are also fairly limited. I remember one oncologist telling me my job was to stay alive long enough for drugs currently in trial to come on stream. What trial and what drugs are you on?

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  • Thanks for replying codfish , its DB1303 low her2 Dynasty breast 02 . I am the only person at my hospital on it . So can’t compare side effects with anyone! Had chem 12 years ago , and wasn’t as ill as i am now !