Stage IV breast cancer with brain mets

I’ll be thinking of you i go Monday to see consultant I never knew they have to make you a mask so maybe they will start that on me Monday did it take long for them to make the mask ? X 

I just read up on the mask making process so know need to respond to my previous question x you are already helping me as I never realised we had to have mask made x

Good morning 

I don’t have the words but your in my thoughts today . I hope it goes as good as can be x 

Good morning to you too.

thank you for your message. I will also be thinking of you for when you get your plan today.

Do you want me to let you know what it’s like? X

Thank you 

Yes it will be good to hear your experiace x 

xx

Good Morning,

How did your apt go?  Have you got your treatment plan now?

so the treatment itself was pretty quick and simple, once I was finally seen, there’s staff shortages, and I’ve been taking steroids in order to have the radiation, which has made me a little cranky so wasn’t a great wait. however, the staff were so lovely and I knew it wasn’t their fault. 
But I will say going to sleep that night was crazy. So many weird colours, shapes and even scenes going through my mind. But I’m ok this morning, but will see how I am come Friday/sat. 

xx

Hello 

Yes got treatment plan I am having 5 days I go Thursday for the mask fitting and still waitting on start date for the WBR but said it should be with in the next 2 weeks.

I found the app very overwhelming.

Back to you … I can identify it must of been hard waiting around especially when full of anxiety thanks for sharing so was it a bit like hullcinations ? my thoughts are with you x

The staff are amazing though I am in complete admiration for the work they do and the time they give x 

So glad you’ve got your apts in place. My treatment started week after mask so hopefully you’ll start next week and get it all out the way as soon as possible. 
I guess it was a little bit hallucinating but once I opened my eyes it all went away. Have you got your steroids too yet? I have to take 2 4mg ones a day from 2 days before and then all week.

and yes, the staff are amazing considering what they have to work with, low pay, long hours and staff shortages. Hopefully it will change for the better. 

please do keep me posted how you get on xx

I’ll keep you posted x I pick up the steroids on Thursday when I go for the mask fitting she said start them on the day I start the radiotherapy but maybe that’s because I have been on the steroids for the last 5 days as my right leg is losing some sensations have you had any effects from the cancer being in the brain x