How long have people been living with mbc I need some hope really struggling

Lindz, the fact that your mid treatment scan shows treatment is working is brilliant and a really positive sign. It sounds like you need time to come to terms with it all, your children are so young but there is every reason to expect to live for many years yet. What about chatting with your breast cancer nurse or the MacMillan counsellors? I had a series of counselling phone calls from my local hospice councellor and found that very reassuring. The hospice is there to support those living with a life limiting illness like us, not just those in end of life care. I think you would find it helpful. I bet you’re tired too with two young children, that won’t be helping. Is your partner supportive? And do you have good support from family and friends? Can you have a break, maybe a little holiday away with the family to have some fun and try to forget about it for a while? wish I could give you a real hug, but sending a virtual one instead.  

Jac x

I’ve got my partner at home as well as my 19yr old daughter who helps with the 4 little ones.. when you spoke with Macmillan nurse did she reassure you that we can live with this for a long time.. me made me write treatable and controllable on my fridge. Everyone been really good it’s my own mind that’s giving myself an instant death sentence. I’ve heard my type is very treatable her2 positive e just finished 6 rounds of chemo which I tolerated quite well and now I will stay on phesgo (targeted therapy) for as long as it’s working xx

I didn’t speak to Macmillan nurse but know that lots of others have but counsellor at the hospice have me little tasks to help me get my mind to think more positively. I don’t mean that you have to be all rainbows and bunny rabbits but to change your mind set slowly. I’m also on targeted therapy but didn’t have chemo as was too far spread I think. Just try and think of it as living with cancer. The treatments are so good now and can keep you going for years. I am er+ and pr+. I’m on Palbociclib and anastrozole and tolerating well. Talk to as many experts and mental health professionals as you can. That might help. I’m sorry I can’t be more help. It might help to join the incurables group. There’s many on there with long term treatable cancer and they might have better advice for you as many have been through the mill. I’ll post the link 

Jac x

Here’s the link to the incurables. All sorts of cancers but everyone having similar experiences x

community.macmillan.org.uk/.../

I was diagnosed jan 22 I had 6 rounds of chemo finished in July 2022 and have phesgo injections along with letrozole tablets for as long as they work now I have scans every 3 months and all so far so good heart scans every 3 months aswell make sure it’s coping with the phesgo and agsin all is perfect, I too struggled to start with but I’ve had counselling from the hosp and it helped me come to terms with it and now I just try n forget about it and think now it’s under control and I’m back to being  me again I get comfort from the fact I go every 3 weeks for bloods then the injection and il won’t slip through the net at anytime as it’s only 3 weeks at a time, phesgo is  very new but already there’s a newer drug for me if the phesgo stops x

What are the letrozole tablets for if you don’t mind me asking xxxx

Letrozole is to stop or slow down the growth of the cancer 

Hi Lindz, I’m just 18 months into this journey. I’ve got ER & PR+ cancer with bone mets so different treatment to you, I’m on my first line.

I just wanted to drop in and say hi. 

The best advice I’ve been given is don’t worry until you need to worry. We’re at the beginning of a journey, there’s never been so much to be hopeful about. X

Thank you for your message, im always worrying I just feel like my life’s over xxxx