Hi I have two children boy 12yrs girl 9yrs, hard to think about the future, worry about them coping without me.

FormerMember
FormerMember
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Hi I was diagnosed last September with secondary breast cancer. It’s spread to my lymph nodes & spine. I’m on Ibrance  Denosumab & prostap. Treatment working well so far. Reaching out to others in the same position. Some days good some days not so! Have trouble switching brain off at night!!

  • Hi , sorry no one has responded so far. It is a hard time, especially with young children to consider. Glad to hear the treatment is working so far, and hopefully will do into the future. The thread started by someone else above yours offers positive news, as does the " positive stories" thread. Hope you can find some comfort in them. The brain does tend to go into overdrive, but hopefully that too will slow down and you can get some peace.

  • FormerMember
    FormerMember in reply to ownedbystaffies

    Thankyou, it helps joining here & your kind comments. 

  • Hi Flowerbabe70                                                                                                                                                                                         First of all so pleased that the treatment is working so far.You have come to the right place for support.I have been on for 3 weeks now ( please read my profile ) and it has been endless. I am still awaiting tests and results to see if i have got secondary bone cancer so i can understand all the anxiety you are feeling.As you read other peoples profiles you will see we are all the same, worried,stressed,sad,and completely overwhelmed by it all.We all have bad days and in my case worse days i have no problem admitting that, as i can see that everyone else does to.This is the right place for you to have a good moan or ask for advice or maybe you can help others out too.The nights are always the worse i know i have had a lot of sleepless ones,and has for switching your brain off thats just so difficult to do.I have only just stopped crying all the time,got it down to 20 times a day now so i know how you feel.I know its going to be hard to talk to your children but many on here have so just ask them how they did it and maybe that will be of some help.Keep well, and take care, Xx

  • Also fill in your profile it helps like minded people get in touch Xx

  • Hi Flower babe recently diagnosed with secondary lung mets and have started on oral  chemo Abemaciclib Monthly injections of Prostap & Fluvestrant. Has been 9 years still nice first diagnosis and receiving a diagnosis is never easy. I found once I had a plan I switched my brain to that plan. I Discuss all my plans with my 2 young daughters aged 19 and 12 and family. Helps me keep positive. But you are allowed to have sad days.

  • FormerMember
    FormerMember in reply to Yorkshire Terrior

    Thankyou Yorkshire terrier, sorry to hear about your diagnosis. It’s great to talk to someone in a similar situation. Feeling better just joining this forum, it’s positive action! Take care.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi flowerbabe. 

    I have recently been diagnosed with secondary breast cancer in my spine ( 4 weeks ago ) a couple of bits of advice I can give you that was said to me are...don’t expect yourself to get your head around it straight away as that won’t happen. Don’t google anything the stats and info is out of date and means nothing and will only scare you more. Take time and try and do things to take your mind off it but that’s easier said than done I know as I’m still feeling very frightened and have terrible days. I am 35 and have 2 boys aged 10 and 14 and from the very start of my diagnoses which was last September i have been very open and honest with them both about my health. It was the hardest thing I’ve had to do but I’m glad I did it and they have started to settle down now. One last thing I will say is there will be treatments for you and you’ll be able to live a normal life, it’s so scary and we all get how you feel as we are all in the same boat. I hope this helps you a bit and please feel free to message me privately anytime xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you lollipops, i'm sorry to hear you have it too. I think being honest with children is the best way as they can imagine all sorts, if not given the facts. Its natural to feel frightened, im finding I feel less so as time goes on but a few blips obviously.

    Love to you & your boys & please message me as well.xxx

  • FormerMember
    FormerMember in reply to wino

    Hi wino, thankyou. It helps to know that im not alone. Really know where your coming from re sleep. recently its been go to bed & ping! wide awake with husband snoring beside me.

    Many thanks for your comments, i hope you feel a bit better soon. i found life has calmed down a bit with my hospital routine in place.

    Best wishes.xx

  • FormerMember
    FormerMember

    https://community.macmillan.org.uk/cancer_types/breast-secondary-cancer/f/breast-secondary-cancer-forum/186433/positive-secondary-breast-cancer-stories?pi5520=6

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    Hi , please check out the positive secondary BC stories through the link above. Hopefully the stories of survival and information about new research will help to give you hope.