Palbociclib (IBRANCE) any one had dose lowered

Hi Yankee

You must be so scared . I am here in UK . Where are you? It feels like we’re in a science fiction movie. I keep looking for the symptoms in me. 
Im scared for everyone- my children both work for the emergency services as does my son in law - so they’ll be on the front line too. They are young and fit though. Take lots of care and I don’t blame you for not going out. 
Things are still relatively normal here . But no doubt that will change soon. 
I’m trying not to mix with anyone but still going out for walks and fresh air. 

Hi Blank 

 My son is a career with the HSE  with the disabled his wife is a nurse They are okay for now just banned visitors only staff to worry about catching it off if the hospital is very short of staff they could be shifted there it’s a worry isn’t it Im in the west of Ireland it’s serious here Everything is shut down If your lucky to get a GP appointment you ring when you get there  stay in the car they ring you when it’s your turn 1 at a time in the chemist you have to stay inside the door the assistant gets your bits and ring the day before if collecting prescription Shops sold out People are terrified Lucky I live in the country side it’s a quiet village but my family are keeping away afraid they will pass it to me I missed my little 11month grandson so much I made them pull up outside the house today I ran out took him out of the car didn’t speak to them and had him for 2 hours it  was heaven playing and cuddling him I adore my little sunshine havnt seen him since Wednesday when my GP said I need to avoid all contact with people and stay home their telling all cancer patients that here Some hospitals in Dublin are delaying cancer treatment to keep them safe  I heard So stay safe it’s hard tho 

Hi Yankee

You sound very organised even though it’s very restricted and lonely for you.,

Im not sure what to do yet regarding self isolation. I’m going to ring oncology tomorrow to get their advice . I have a choice of where to live - on my own deep in the country or in the family home with 2, adults . 
Trying times for us all. 

Hi Yankee & Blank

you are both absolutely right it is so scary.  My family all live close by and my husband, son and son in law all work for our small business, they are engineers so they have to work out and about an can not work from home.  I have been out and about until today, looks like its all going to change here, I live in Hertfordshire and we are rather too close to London so as it spreads there we will be following their advice.  

Im not worried about my family as they are all healthy and so if they are put into lock down it will be just boredom that will be hard work and lack of supplies as the supermarkets are empty and that does worry me for others.

I know my family will all stay away but I already have bouts of loneliness as they dont come by if any of the children or themselves have the slightest sniffle.  I will go insane if I dont see them.  

I am going to request coming off my medication for a few months, so that I wont be so vulnerable... I know it sounds mad but at the moment my scan came back with NO SIGNS the cancer is in my blood and marrowbone but i have no tumours left (I had an operation to remove a few more pieces of me in November... nowt left to take now).  So I think if I come off treatment maybe I would stand a better chance.  My husband and children think Im mad even thinking of it but I am meant to see the oncologist next monday so Ive sent him an email to see what he thinks.

The problem will this virus is we have so much information and yet we are not being told how we will get to the shops... need to eat at some point, or go the the doctors, hospital appointments etc.  

My biggest concern is my poor mum, 84 and has dementia.  I do all her shopping and cleaning etc.  the only thing she has is meals on wheels and they may stop.  I have no idea what to do about looking after her and she is too confused to discuss it with her.

Hey ho,  lets try not to be too overwhelmed.  We have all survived cancer before and I am sure we can survive this.  even if I do end up watching TV 10 hours a day lol.... 

stay safe 

onwards and upwards

Hi Blank 

my Husband is here he’s working all day gets the few bits in the shop he’s carefull washing his hands and sanitizing them before he comes into the house and keeping his distance when speaking to the lads in work I wouldn’t let  him move in with family and stay on my own you know that would be to hard gosh we would end up insane   well I would haha no just be extremely carefull and tell the 2adulds to be over cautious what more can we do We are def doing it right then not much more we can do I sit at the table with him and in the sitting room we share a bed the bathroom towels Hopefully we are being carefull enough Oncolochy told me this eve when they phoned with blood results to check my temperature twice daily if it goes up to ring and they will talk to me another precaution we can take seemingly the temperature goes up at the beginning of the virus Sorry Blank I hope I didn’t scare you stay safe 

Hi tea 4 two 

believe it or not  the treatment is the  not problem it’s the cancer even you had it 10 years ago your still high risk  I listened carefully to a top oncologist on the telly and radio he’s excellent and because I have heart disease as well I’m really top of the scale to catch it  my GP is being extremely cautious If you really need to see your family ye all could wear masks and gloves ordinary gloves don’t get to close that’s safer than going off treatment I did suggest that to my family but for now they said no but I’ve a feeling in a few weeks they will .We all gather every Sunday here for dinner and goodies I’ll really miss that Stay on your treatment I know what you mean about lonely I went to my daughters house this eve and spoke to her as she was holding her little 3month girl at the window for me to see Upsetting but it stops them worrying about Mammy they are so afraid my eldest was crying said if you go into hospital we won’t be able to visit sure there not allowing funerals here the undertakers refuse they are doing cremations you can have a service when this blows over how frightening I know it’s really hard to live this way but hopefully after 2 or 3 months it will be gone and we can get back to normal Sorry if I’m scaring you for some reason I’m being positive this time I think my last scan gave me hope and I’m willing to try for awhile I hope nx week I feel the same My daughter is back in work nx week so I’ll have my little sunshine an odd day when their both on the same shift I probably shouldn’t but they have to work and I need to have him he cheers me up I adore him 

Sorry Yankee

I thought I had replied but I'm so tearful I think pressed wrong button.  

I hadnt heard about it being the cancer making me vulnerable I presumed it was the drugs.  I'm sure my oncologist will laugh at me an say no.

I just feel without seeing my family I wont cope. I see my daughter every day an my son pops in an out   like you sunday is all about family.

Well I suppose I will have to get on with it but 12 weeks is the minimum so not sure what will happen.

Thanks for your insight.

Keep safe

Onwards an upwards

Hi Yankee and Tea for 2,

Thanks for the reply . It’s such a difficult time for everyone - each individual has their challenges. I’m in a quandary - stay here on my own and self isolate or go home and be with two working adults both in front line of interaction .

I am waiting to hear from oncology so when they are able to ring I can clarify things . Blood test due by Monday but wondering if they’ll let me forego that and just wait a bit longer ( like 10 days) and then restart. 
I am a long way from home and local hospital a drive away . 
Many decisions to make . 

Nervous!!! 

Tea for two 

All we can do is try our best to stay safe I personally think we are in the worse situation already battling to stay alive Dam the virus I’ve had a few sleepless nights worrying about it but I’m nowaying there’s nothing I can do Jesus I put on gloves to take in the post and checked all and burned them I’m getting a bit to over cautious am I I actually use the the sanitizer on my shopping and bs before I put it away I was seeing my grandson everyday and granddaughter 4 times a week but now I can’t  it’s up to us now we’ll actually my family has decided it’s cruel ladies Be carefull all do what’s best for you and your mental health that’s as important 

Hi Blank 

if I was was you I’d stay home Hope this helps cut a long story story short Oncolochy wouldn’t let me skip bloods needed them done ystd I rang the nurse who use to work in surgery she insisted on ing them said do not go near the hospital and will do every month until this ends phew She arrived at my door sanitized her hands put on her gloves and mask even gave me the bone infusion Now her sband has stage 4 cancer is on immune therapy they have 5 children at home from 21 down to 10 all in collage or school She works 2 days in a surgery doing bloods 1 day and dressings Her husband isust using the en-suite only him they are all sanitizing their hands  and washing them constantly she’s doing the shopping and the schools and collages closed only on fri She said take anyone in thhouseholds temp twice daily and change towels daily sanitized everything regular ie door handles bathroom kitchen no need to go over the top She’s an excellent nurse worked in A&E for years She said  the less contact with people is better stay home and do take my grandson just take him out of the car outside Now I just phone her about you blank she said lucky your family will know exactly whasteps to do keep you safe her advice was the same as above and only if you feel you can stay away and won’t get depressed as mentally your going through enough don’t do it but she said that’s only advice she can’t tell you what to do Her husband talked about borrowing a camper van and staying it outside the home but said mentally he wouldn’t cope Hope this helps Blank you poor thing it’s so ightening I honestly couldn’t stay completely isolated If my husband happens to even sniffle I’m afraid he will be outside in a camper van lucky my Son And Daughter both have 1  Gosh it’s so tough trying to decide what’s best this is not going to end quickly