Help what to do ???

Gusmum 23 days ago

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Just back from oncologist post lumpectomy , nipple removal and SNB . ER/PR positive HER negative. Tumour removed with clear margins but twice to side stated 22mm, and macromet in lymph node. Surgeon said RT one week as onco score low at 14. Oncologist today says either total node clearance and radiotherapy to breast and drugs or radiotherapy only to breast and lymph nodes with drugs but if latter 3 weeks RT. Also both six monthly alendronic acid IV. Up to me apparently what I choose ?????? As I’m moderate risk they can’t really say which is best. WTH am I supposed to do ? At 58 I have choice but if I were in my 40s have the surgery and RT. I feel in my 40s ???? I’m so frustrated

Coddfish 23 days ago

Hi Gusmum

All I would say is the oncologist is likely to be the expert on this, not the surgeon. The choice between node clearance and radiotherapy to the axilla is the key issue for you to consider. Higher risk of lymphoedema with surgery but perhaps slightly lower risk of recurrence.

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Karlou 23 days ago

I was very similar to you. I was also given the choice between full node clearance and radiotherapy(5 sessions) or radiotherapy(15 sessions) ribociclib and zelodronic acid infusions.

At that time, I wasnt told that radiotherapy would be longer, only when I went for my radiotherapy planning session, they advised that it cover whole breast, lymph nodes and clavicle.

My surgeon said there was a lot of risks with having full node clearance and the risks were the same, but a personal decision to make.

I went for the 15 radiotherapy and ribociclib, zelodronic acid infusions(for 3 years)

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Help what to do ???