Not what we were expecting

Desrev2015 22 days ago

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Feeling scared and worried. Yesterday my partner had her pathology results following right breast mastectomy. She has invasive lobular carcinoma. Pre op the size of the cancer was
58mm. The results shared today - two tumors attached to each other total area 200mm. Clear margins achieved - one huge sigh of relief. The two lymph nodes removed both tested positive for cancer. We are back on Friday for full lymph node removal. I pray that there is no further lymph node involvement.

I’m looking for some positivity, has anyone else had such a large amount of cancer and lymph node involvement and come out the other side. My mind is spiralling, it’s been a lot to process today. Tomorrow, new day, positivity to resume.

Anna12345 21 days ago

I had invasive ductal her2 positive with lymph node involvement but yes. Yes lots of us are still here, living a normal life, unbelievably as that feels from where you’re sitting now, I remember. This is a crap time and there’ll be these dark days and that’s normal to feel this way. But also have hope. Five years on and living a good life. All the best xx

RoseViolet 21 days ago

I was lucky with my lymph nodes, although less lucky regarding margins.

Three of my relatives who are breast cancer survivors had various amounts of lymph node involvement. I know that one had radiotherapy and hormone treatment but not all the details. Another one was offered chemo, but looked at the statistics and opted just for radiotherapy and hormone treatment. The 3rd had her results sent off to the USA, they said no chemo needed, she got hormone treatment.

Apparently, about 80% of breast cancer cases are hormone-related. The hormone (endocrine) therapy won't work on the other 20%. As far as I understand it.

But there will be people on this forum who have had very bad experiences but have come through it. And they can help you through it.

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Not what we were expecting