Deciding about whether to have chemo

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I had an appointment with my surgeon yesterday who confirmed I have clear margins (after second surgery) following a lumpectomy and no node involvement. My tumour is mixed biology of tubular and ductal and was 16mm (1mm found in margins which resulted in second surgery). I am triple positive but only grade 1 which is unusual for her2 positive, but it seems that the tubular component has reduced the risk. She told me that following an MDT, although I was previously told I would need chemo, this is now going to be offered as an optional because it will only be a minimal benefit. Instead, I would have tamoxifen and radiotherapy for 5 sessions.  However, she said the oncologist would call me Monday to discuss further.  I have used the predict and it shows 0% of benefit, but I am aware that it is not fully accurate of her2 cancers. I am thinking that I will choose not to go ahead with chemo, and my family agree, but has anyone else been in this position?

  • Hi there, I'm one of the champions here in the group and I just wanted to acknowledge your post.   I find it so difficult when we're asked to make these choices, it's hard to know what to do.  You might find chatting things through with the lovely folks here at Macmillan could help you. You can call them on 0800 808 0000 every day from 8am to 8pm.   Good luck with your decision 

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