Hi All
So after my re-incision my surgeon said he still couldn't get clear margins and also said there was more cancer involved so sent me for an urgent CT Scan. My Oncologist has just called to say that thee Cancer has spread to my bones. Specifically my Pelvis, Back, Chest Wall and Left Arm. Now I'm being sent for an urgent PET Scan before deciding what to do next.
I am absolutely heartbroken. I had a clear CT Scan in January, how do we go from that to this in 6 months. My Oncologist did say it hasn't spread to any organs so that's a positive but I'm finding it really hard to find anything positive about this situation.
My Breast Cancer is ER+ HER2 negative. Lumpectomy January 2026, 19/19 Lymph Nodes involved. 8 rounds of Chemo February to June, Re- incision July and further CT Scan last week.
Anybody else had this type of journey? What can I expect now? I'm struggling with this latest news and I'm so scared!
I am sorry your breast cancer has spread to your bones. It sounds like it’s been an unfolding horror story for you. I also have metastatic breast cancer. I found mine was in my liver in 2022 whilst I was still going through chemo after my primary diagnosis. It’s a horrible shock, isn’t it. It certainly took me to very dark places initially. I also had a PET/CT to confirm exactly where the cancer was. The process involves putting a radioactive glucose tracer into you through a cannula. You then sit and wait for an hour. Cancer cells take up the sugar more quickly than other cells so areas of cancer ‘light up’ on the scan. It’s therefore easier to read than a standard CT scan.
It’s helpful that your cancer is ER+ as there are far more treatments available than, say, for my triple negative cancer. Your oncologist will come up with a plan. There are targeted treatments alongside bone strengtheners and oestrogen blockers. Hopefully the drug combination they come up with will hold your cancer in check. Many people do live good lives with metastatic breast cancer and I hope you do too.
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I have metastatic Triple Negative Breast Cancer, in remission
