Lobular breast cancer & Diep flap surgery

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Hi, this is my 2nd time of posting. I have Lobular breast cancer & it has spread to one lobe. Just found out from MRI that the lump is double the size they thought it was. I guess it doesn't matter if the breast is coming off. I am estrogen & Progesterone positive. I have a provisional date for my Mastectomy & Diep flap surgery on the same day. They are also going to reduce & match my other breast too. I know that I need Radiotherapy after the surgery. I just wondered if there is anyone out there who has had the same? I would love to hear your views, stories & tips for surgery prep & recovery. Interested to hear how many rounds of Radiotherapy you had & if you needed chemo afterwards. Apologies if I have some of the terminology wrong, definitely still learning! I feel as if my life is on hold at the moment & I just want to get going with the treatment. Feeling positive though & blessed to have such a supportive network of family & friends to help me through this. Good luck with your own treatments & thanks in advance for any replies xx 

  • Hi Acron

    I'm Daisy53 one of the Community Champions on this forum.  While I don't have the experience you are looking for I thought I'd reply to move you to the top of the discussion.  Hopefully someone will be along shortly with an answer for you.

    Best wishes

    Daisy53

    Community Champion Badge

  • Daisy 53,

    Thank you, I appreciate it x

  • Hi Acorn I had an LD reconstruction in 2004 which is different to the one you are considering but there will be similarities if you want to ask anything. 

    I also had a recurrence in 2025 and had my implant replaced and 15 sessions of radiotherapy to the reconstruction. Im pleased to say that the actual skin flap survived the radiotherapy intact. Which was great. Unfortunately the implant has developed capsular contraction so I am facing removal. They cant replace it as apparently it's likely the capsular contraction will recurr. They have offered me a DIEP to replace my implant but Im not quite sure yet what this will involve since I have an LD skin flap. I doubt I'll find anyone in the same position as me but I 'll be interested in hearing what a DIEP involves. 

    Its good you have a support network around you, its so important. 

    When I had my LD it was 1 night in HDU then 7 days in hospital and when drains removed. Then about 6/7 weeks of taking it steady and 6 months to feel back to a "new" normal. Ask away if I can help but obviously it was a slightly different recovery to DIEP 

    Xx

  • Susz,

    Thanks so much for your reply. I am so sorry you find yourself back here again. I am very nervous about the diep, as there will be my stomach and 2 breasts to heal all at the same time. I'm having the non affected breast lifted & reduced to match the newly constructed breast. I'm just reminding myself this is just one part of my life, so I need to suck it up and be brave in order to have a future. It's all the waiting that gets to me.  Good luck with your treatment, please update and let me know how you get on xx