Invasive lobular carcinoma

  • 3 replies
  • 280 subscribers
  • 40 views

Just received my diagnosis on 30th December.   Im having an MRI next week to see of the cancer has spread further, but at present they're staging it at 1-2.  If that's the case, then a lumpectomy, radiotherapy and 4 years of medication. 

It hasn't sunk in yet.  I just feel numb about it.  I actually looked in the mirror yesterday and said to myself "I have csncer".  But nothing.   In the meantime, I've been making a few purchases for post surgery,  following the recommendations on this forum.

Wishing everyone a Happy 2026 xx

  • Sorry that should say 5 years of medication.  I've also been told to stop taking the pill.  Im 52.

  • Hi there and Happy New Year to you.

    I was diagnosed with Stage 2 ILC Dec 2024 and I was also 52. I wasn't on the pill but had the Mirena coil, which I was told to have removed immediately.

    I completely understand the feeling of numbness about the diagnosis, as I was exactly the same. I could not (and tbh, still can't) really get my head round the fact I had cancer. It all felt very surreal and I alternated between crying all the time and being in denial.

    It's a year next week since I had my op (bilateral mastectomy without reconstruction), which was followed by chemotherapy and radiotherapy. I'm now on endocrine therapy - hormone suppressants, implants to suppress my ovaries and a drug called Abemaciclib.

    Whilst I can't say treatment was a walk in the park in anyway, a year later I still feel that the time b4 surgery was the hardest mentally. As soon as I'd had the cancer removed, I felt much calmer as knew it had gone.

    I don't know your situation, but my family and friends have been amazing and I've found its really helped being open and honest with them about how I'm feeling rather than trying to put on a brave face on it all.

    Please feel free to ask if you have any questijns - I found the others on these forums and my bcn so helpful and supportive.

    Wishing you all the best xxx

  • Thank you NicW for taking the time to reply.  Yes, I'm lucky in that I have a very supportive partner and family who check in regularly.  The strange thing is, I seem to be the one reassuring them and being positive!  My surgeon who i met to discuss initial biopsy results was brilliant, as was the BCN, so kind.  The wait was finally over and I had something tangible and a prospective treatment plan as a way forward.  

    Jo xx