TNBC

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Hi all

I have just been diagnosed with Stage 2 TNBC with no lymph node involvement. Can anyone share any experience with TNBC and what to expect with treatment. Google really only tells you the bad and there doesn’t seem to be many ‘happy’ stories out there in regards to TNBC. Thanks x

  • Hi  

    I was diagnosed with Stage 1 Grade 3 TNBC 3 years ago. The tumour was small enough for me to have a lumpectomy but, unfortunately, a microscopic amount of cancer cells were found in one of the two sentinel lymph nodes removed during the operation. Because of this I was offered chemotherapy, which I took, followed by radiotherapy.

    Do you know if you're having a lumpectomy or mastectomy? I didn't have any trouble getting mobility back after my lumpectomy and was also fortunate that, apart from hair loss, I didn't really struggle with chemo.

    There has been no evidence of disease (NED) since my treatment finished and I'm enjoying life. So I definitely count myself as having a 'happy story'.

    Anne

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • They haven’t said yet. They said chemo first and when that has finished they will then see if it’s lumpectomy or mastectomy. I’m happy to do whatever will give me the best options in life for me and my young family. 

  • Hi I was diagnosed with TNBC in October with a low hormone count  3/8 

    I have BRca 2 diagnosed last year 

    I had nothing in lymph nodes, the surgeon said was 50/50 weather to have chemo first but after a meeting with oncologist they decided to do op first 

    that was 3 weeks ago just had lumpectomy and they found nothing in the lymph nodes or in the margins 

    I start 6 months of chemo on 8 January 

    this is just preventing any cancer returning 

    it’s a awful time and I’m trying to stay off the internet as as you said lots of different opinions 

    good luck with your surgery