Kadcyla - in despair

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Hello everyone, I found out today that, despite an MRI showing a complete response, I had a tiny amount of residual disease on pathology so will need Kadcyla. I am absolutely devastated and literally feel I have no gas left in the tank to do this. I thought I was done with chemo and the thought of another 10 months of this has got me in utter despair. Can anyone tell me their honest experience of Kadcyla please. 

  • I had this a few years ago. It’s nowhere near as bad as the other chemo, hopefully you won’t even notice side effects, except tiredness. The main issue I had with it was that by that point in treatment I became fearful of the trainee nurses not being able to find my vein, and prod me in the wrong places- which was agony. 

    Hope it goes okay for you. 

  • Thank you. That’s reassuring. My oncologist tells me it will get me to the same disease free odds as the folks who achieve a PCR and continue with Phesgo. I am holding on to that. Just so frustrated that I so nearly achieved that PCR but not quite and now I am back on chemo lite. Ugh. But your message has made me feel better so thank you. 

    Your message about the trainee nurses made me giggle. My veins are a wreck but luckily I have a port. However when they try to find a vein for my MRI it’s carnage!