Side effects of tamoxifen

Hi

I'm in my 1st year of 7 taking Tamoxifen (started February of this year) and the side effects are extreme. My GP said to keep going after conferring with the cancer team. I get awful hot flushes and now cold sweats as if my body can't regulate it's temperature control

.I don't get muscle weakness but restless legs and muscle spasms, usually when I lay down or put my legs in an elevation. I still get sickness/nausea and extreme tiredness to the point I still need help at times but found my sleep drastically reduced. Used to be a 12hr sleeper, now a 3 or 4 hr if I'm lucky. I don't know if anyone has experienced this?!?

I've also found that, although I didn't get neuropathy during chemo, It's really bad now in toes and finger tips!

Let us know if it does get any easier

Take care of yourself

Luckily I didn't need chemotherapy. I just had a lumpectomy and radiotherapy, then the letrozole for less than 2 years before it made my mobility bad. I've been on the tamoxifen since then and now you mention it I do wake up loads during the night. I used to sleep well. The other thing I've noticed is that I get quite bad tempered sometimes and that's just not in my nature. I'm usually very laid back. I'm worried these changes might stay with me even when I finish taking the tablets.

Thanks for replying and sharing your symptoms 

Letrozole hasn't affected my mobility but it has affected my sleep and mood. I've put it down to lack of hormones as they're classic symptoms of menopause. My mood sort of levelled out after a while but sleep can be really patchy

Thanks for replying. I'm lucky that I didn't have any of the negative symptoms when I went through the menopause. I just didn't think about it. Now I'm in my 70s it's quite hard to put up with. Only 2 years to go hopefully