GSF injections - questions!

jlw 23 days ago

3 replies
282 subscribers
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Hello,

Would be grateful for the benefit of others experience.

So I had first chemo two days ago... and had conflicting info re the injections.My care is shared between 2 hospitals - so the hospital I was booked into for the pre-treatment session and where I have been for all my appointments was the place where I was originally booked into for the first chemo session. At the pre-treatment session I asked about when would I be shown the injections - having docotaxel for initial cycles , followed by EC - and was told by the staff nurse that I would not need them for the first drug.. its for the second drug that I have them. The day before the chemo session was called to say that the session location moved to the other hospital due to capacity.

To cut a long story short I was told at this other location that I do in fact need them for all of the chemo drugs...so am going back there today to be shown and collect etc.

My questions are -

(appreciate everyone is different), has it been the case that others have had them for docotaxel and EC?
having read through some forum posts - do most experience bad side effects? they sound so unpleasant?

Best wishes

Irishgirl16 21 days ago

Hi there, I'm one of the champions here in this group and whilst I don’t personally have the experience you're seeking, I wanted to acknowledge your post. You might want to consider giving the lovely folks at Macmillan a call to chat this through with them. You can reach them on 0800 808 0000. Best wishes

Anna12345 19 days ago

Hi Jo, I had ECT too and had the injections with both drugs. I was originally given 7 days worth but I reduced them after discussing it with my team as I was getting excruciating migraines with the later injections. Having only 5 days stopped that although I did have some bone aches and headaches. My white blood cells did hold up throughout treatment though so I was grateful for that. See how you get on because some people have few issues and some a lot, incredible how our bodies all react differently to the same drugs. All the best x

Cynoptimistic 19 days ago

Hi Jo,

i had 5 GSF injections for each of my 4 cycles of EC, then had 12 weekly infusions of Paclitaxel without any. My white blood cells held up pretty well throughout.
I found that my shoulders and pelvis ached a bit with the injections, but not too badly and I knew why it was and was sort of pleased that my bone marrow was responding to the stimulation!
I found the nausea and digestive difficulties in the days following the EC infusions more trying than aching from the GSF.

All the best xx

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GSF injections - questions!