I'm starting the trofuse 010 clinical trial next week. Is there anybody else on this trial and if so what has your experience been? Any side effects?
Hi Princess Flo
I’m Anne, one of the Community Champions here on the Online Community, and although I'm not on this trial, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
I did a search in the group to see if I could find any previous posts which mention this trial but drew a blank I'm afraid. Of course this doesn't necessarily mean that no one else here is on it, it could just be that they haven't posted about it.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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