EC

Hey, hope you’re okay - getting there! 

I was in bed a lot with EC. Generally about 4 days after infusion for about 5 days. Then was okay after this… 

Rest when you need and can… 

My taste buds weren’t great throughout chemo and had a sore throat with EC, again, it did eventually pass 

Good luck and keep your chin up!xx

Hi Allworthit 

Thanks for your post. 

In my experience, EC is a tough treatment. I struggled with it big time.

I encourage you to be gentle with yourself,  don't expect too much of you.

As the treatment goes on, you will learn your personal pattern. You will know when you need to rest and when you can do a bit more and when to expect to feel a bit better, in between rounds.

I wish you a gentle time through treatment and beyond. Hugs, Shaka 

Thank you for the reply. Think helps just knowing others have and it’s normal! People keep saying as well “least you haven’t  got sickness”, and I am grateful for that but still feel rough! 
back to bed I go!  Xx

• Hi Allworthit, my daughter is just coming to the end of 20 months of treatment  .. 22 chemos, 15 sessions of radiotherapy and 3 surgeries. She would say that EC was without doubt the worst. Tiredness, horrendous nausea, dizziness, taste. All of it - she remembers she could only cope by spending most of the time, certainly for the first five days, laying down and keeping very still. But she got through it and you will too. Sending strength, very best wishes and the biggest hug!

Thank you.. I’m so glad she’s done it! You are right, il do it.. best wishes to your daughter xx

Hi  

I had my 2nd EC on Thursday and tbh I feel utterly wiped out. I’m having 4 altogether fortnightly then onto 4 Paclitaxel fortnightly.

By Thursday eve I felt nauseous, bloated, acid reflux, sore mouth, tongue, funny taste, sensitive to smells. 
I felt like that all day Friday too.felt brighter the weekend but today just exhausted again.

I managed to change my bedding but that was it.

I’ve had a really heavy period too after each EC ! The last one was 10days , a few days free and has started again…..I’m nearly 54!! Think that’s not helping my tiredness!

i agree with you, I did feel better for laying down, helped with the nausea.

I did wonder if it all gets worse with each one?

am hoping Paclitaxel is better…..?

hope you get through it ok - sending hugs x

Ah bless, sounds like how Iv felt minus the period. I did 12 weeks of weekly paclitaxel and had a some pins and needles and bloatedness but it soon resolved it self and was just tired a little bit, nothing like the EC.

iv now not had periods so guessing may come back when I lm finished, will see. I’m 41 so don’t mind not having them! 

take care - we can do this  x

It is tough isn’t it!

how many EC’s have you left?

will that be you all finished with chemo?

Iv three left and they are every three weeks and then done! Then surgery and radiotherapy… hopefully that’s it then

1/4 way through then all done for chemo

you've got this! X