My oncologist has refused to give me a stage instead using the TNM score, this makes me wonder what they're not telling me.
I had 2 invasive breast cancers and 2 dcis in my left breast and a mastectomy 6 months ago. It is also grade 3 her2 and er positive.
I guess I assumed it was stage 1 as the tumours were small, 1 cm but they haven't said the size of the other one and it hadn't spread to the lymph nodes but good old Dr Google comes back stage 2.
I also got anaphylactic shock both times they gave me docetaxol and are now refusing to give me chemotherapy as that was the only drug that my cancer responded to. I was considered borderline for radiotherapy but again they have refused that.
Is it normal to not get a stage and is Dr Google likely correct?
Also I'm worried about follow up once my treatment finishes as I also read that it's more likely to reoccur in the same breast and they obviously can't do a mammogram on that. I read that an ultrasound isn't normally given on the NHS but wonder if they would make an exception in my case?
I have also been googling conjugated monoclonal antibodies and wonder if that is available on the NHS, it is very expensive but may not be approved in the UK.
I don't find the nurses very helpful, not getting back to me or phoning days later and not giving me straight answers.
I would be grateful for any opinions.
TIA
It might just be that your surgeon doesn't bother with the stage. I was just told early stage and looked up staging on Macmillan.
If you want to speak to someone, if no-one here has any opinions as it's probably unusual to have such reactions, then you could try ringing Macmillan to ask advice. Telephone Number: 0800 808 00 00
By answering, I've also bumped your query back to page 1 as it had slipped to page 2.
Kindest Wishes, Lesley
