Hi all, in May 2020 I found a lump in my breast three weeks later I had a lumpectomy and lymph node removal. I was diagnosed with grade 3 hormone positive breast cancer that had spread to my first lymph node. I had Taylor dx oncotype test which indicated low to medium recurrence risk so I was Given radiotherapy in 10 years of hornone blocker tablets. I have now been on tamoxifen for nearly five years and have had enough of the side effects, my legs ache all the time, I’m exhausted, I have zero sex drive, I have retinal toxicity and lose teeth due to bone loss which the dentist feels could be connected. After speaking to my breast nurse yesterday it has been decided I take a break from the tamoxifen and then discuss at my five year checkup up. I was wondering what happens at the five year checkup up? I have been told it’s over the phone but will include some facts and figures. Apart from the ladies doing the mammograms I haven’t seen anyone since my op. Because of this I went private last year for an ultrasound and breast mri which made me feel a lot better. I asked the dr about a dexa scan but was told they don’t do them when people are on tamoxifen? Is this the normal? I know in other countries they do them as routine?
