Hi there, I just noticed your post had slipped a few pages as the site is busy. My response will bump it back up and hopefully someone with the right experience will be along soon. Best wishes
I will try and find the paperwork I got about a trial for TNBC. I declined as I had finished chemo and two of the three treatments included chemo and I couldn’t face losing my hair again.
Hi, so sorry to hear this. How long did you have to wait between your diagnosis and starting your chemo? I have been waiting 10 weeks and still don't have a date
Since 17th October. Start the treatment and chemo on 13th November. First referred on 10th September but took over 4 weeks to get results. Awful time waiting x
Hi! I wish you all the best. I was diagnosed with TNBC last January, had 16 chemos, 7 immunotherapies, but the tumor was found bigger at the surgery so chemo didnt work. My doctor suggested Tropion Trial medication. I got 8 more chemos, with really serious problems with mouth ulcer and finished last April. Having just recovered, I had a pet scan yesterday and seems there is spread at one lung. I am a very healthy person in general and cyclist, with good mood and not too anxious. I think Tropion did not help but still dont know what would have happened if we followed other protocol with pils. I wish you better luck.
