Advice for someone about to have mastectomy, radiotherapy, then delayed reconstruction? Treatment plan changed last minute

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I found out on Friday that my surgeon has decided he wants to do a delayed reconstruction.  This decision was made 4 days before my operation date (mastectomy,  node removal and TUG flap reconstruction) due to fears they could risk leaving some cancer cells behind if they did the reconstruction at the same time.   

The plan is now for me to have a mastectomy, skin removal and node clearance in 2 weeks time followed by 20 doses of radiotherapy over 4 weeks and a delayed reconstruction next year.

I'd not mentally prepared myself for having to live with a flat side or go through radiotherapy. I'm trying to keep positive but this on top of losing my hair and other physical changes from the chemotherapy has come as a huge blow.  I know it's temporary and i know it's about saving my life but I'm worried how this might potentially affect my mental health living with 1 flat side when i had mentally prepared for an inatant reconstruction.  

Please can anyone offer me any advice about how I can prepare for this?   Is there anything I might need to know about what's coming?  Or anything that you found useful or wish you'd known/done/not done?

Thank you.

  • The tamoxifen wasn’t too bad. It made me nauseous to start with so I switched to taking it on the night which helped. It did reignite all my menopause symptoms especially the hot flushes but I found ways to manage it.

    im not brave enough to try showering with the dressing I have just been having a strip wash morning and night with unscented soap/bodywash. 

    i have reduced my usage of painkillers it’s still a bit uncomfortable but not painful there’s the odd “healing twinge” under the dressing but nothing I can’t cope with.

  •    that's good to know about the Tamoxifen. Ill remember to try taling it on a night whenbi start it.  I'm currently on Phesgo injections and experiencing hot flushes, what have you found helps woth yours?

    Oh bless you.  I have a not of OCD around showering so the idea of not bring able to is making me more anxious than the actual operation,  as stupid as thst probably sounds See no evil

    I'm glad to hear that you're coping well with the pain.

  • Cold drinks and a fan are currently my best friends Joy 

  • Haha awww noted, thank you.  Blush