How likely is a Stage 1 Grade 2 Lobular Cancer likely to be HER2 positive?

I’m sorry, I don’t know the answer to your question. I’m HER2 negative. 
it’s such a confusing and emotional time and taking in so much info is exhausting. 
I’ve found my MacMillan Nurse to be the font of all knowledge - have you got access to yours yet? 
sending positive vibes. I hope you’re ok x 

Thank you so much for replying. Mine is lobular - is that the same as you? I am so hoping for  HER2 negative as I understand that chemo will be unlikely. Sending love and hugs xx

Hiya. Sorry I didn’t respond last night. I fell asleep… 

Yes, mine is Lobular too.  I had a biopsy and got my diagnosis at the same time so didn’t have to wait to find out if it was HER2 negative or positive (not that I even knew what that even meant). There’s just so much info to take in. There still is and I’m 5 weeks post surgery. Hopefully you won’t have to wait too long. Did they tell you when you’d know? Have you had your MRI yet? 
it feels like I’ve spent the last 8 weeks waiting for this or that though. I’m waiting now for the results of my oncotype test which will determine the next steps in terms of treatment. 
I was told early on to try not to overthink things and live in the moment but it’s not easy xx

Hi, mine is lobular and was er+ pr+ her- and I was initially told no need for chemotherapy and that I would be having radiotherapy only. Unfortunately for me they found an unrelated tumour in my lymph node which was her+, I had my first chemo yesterday! Unfortunately I've found that this horrible disease throws things in to throw us off plan at times and things change in the blink of an eye.  Maybe the best thing is to prepare for the worse case scenario and it will be a really welcome bonus if you dont have to have the chemotherapy. Sending hugs to you, it's a journey none of us deserve to be on xx

Thank you so much for taking the time to reply. I'm so sorry that things did not go as planned. I'm beginning to realise that this journey has an everchanging landscape and I am very thoughtful about how to proceed. Apparently during the pandemic ladies over 70, with early stage breast cancer, that were ER positive and HER2 negative, were prescribed Letrozole. I'm considering all options. Being HER2 positive would I guess preclude that option. The recommended pathway for me is MRI scan using contrast dye by intravenous infusion (to establish extent and margins), then lumpectomy and removal of lymph node. Then the wait for the next step, but radiotherapy - minimum 5 sessions but up to 20. That is, as you say, if there are no surprises. I hope you experience yesterday went as smoothly as it could, and I send you my love and hugs. xx

Hi thank you so much for sharing. It helps to know that I'm not alone. Not yet received my appointment for the MRI scan. I'm massively claustrophobic and suffer with extreme hospital anxiety. The thought of the i/v dye as well as the MRI scan feels beyond me. The surgeon said she would consider doing the lumpectomy without  the MRI, but at the risk of not achieving clear margins. Might mean a second theatre visit. Did you find the surgery onerous? My HER2 should be back any time. I'm considering all my options. Apparently during the pandemic ladies over 70, with early stage breast cancer, that were ER positive and HER2 negative, were prescribed Letrozole. Being HER2 positive would I guess preclude that. I send you my love and lots of hugs. xx

The mri wasn't as bad as i expected to be honest, I too get a bit claustrophobic but I was face down so didnt even know I was in a tunnel, I just got a bit cold and stiff as you are in there for 30 to 40 mins. The lumpectomy wasn't anywhere as bad as I expected either, I found that I didn't get much pain from the wound at all as it was numb, I did get arm pain and stiffness after a few weeks though so make sure you do the exercises that they give you. I can't comment on the letrazole but I'm on tamoxifen as I was pre menopausal, that in itself can be a bit brutal on your bones and joints which I suppose is a necessary evil. The chemo yesterday knocked me off my feet, I felt like I'd been hit by a truck and both myself and my husband had a very sleepless night but I do feel a lot better today although very weak, the anti sickness tablets appear to be doing their job which is good because I despise being sick. I was well enough to go for my wig referral fitting this morning so I must be doing ok.  Big hugs to you on your journey, whatever it throws at you you will get through it xxx