So in September last year I had a lumpectomy and then had eight rounds of chemo with two weeks of radiotherapy which finished at the beginning of April, the consultant, although they didn’t do a scan, said the lumpectomy gave clear margins, and there was no reason to believe that the chemo and the radio didn’t work so I was cancer free.
However, this week I’ve been diagnosed with a brain tumour and they are saying the likelihood of me having another primary cancer is rare so they think it must be secondary and therefore my cancer has come back. It seems hard to believe to me. Has anyone else been in this situation?
i’m still waiting on scans so don’t know anything for certain yet and know all of this is speculation but anyone’s experience would be gratefully received
None of us know what we have inside us. How they decide who gets treatment and who gets scans is
a bit random. They have all the explanations but still doing at least one scan per person would be useful.
Sorry to read that about your secondaries. Trying to get on with life now, just in case but hormone blockers have depleted my energy.
He is lucky I worked in the NHS all my working life, I keep going if I don't get the right response. He was referred to Guys last year and I didn't realise the person I saw wasn't a Doctor. She was what they call an Associate something or other, a mid point between and Nurse.
A prescription error occured on the letter she sent to his surgery. The thought she was a Consultant and they let it through. It was a massive increase in an anticonvulsant. It got all the way to a prescription but the pharmacist queried it. It prob would have killed him. I put a formal complaint in about that.
He is so vulnerable, I have to be vigilant. They maybe wait for the results to come in before allocating depending what type of tumour it is. I look up NICE GUIDELINES if I need to check things out. I hope you are seen soon to give you some answers.
Hope and prayers for you.
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