Triple negative breast cancer

I have also just be diagnosed with triple negative bc and are awaiting my MRI results.  It’s all so very scary and frightening.  

Google is not our friend either! My support worker said not to read anything older than 10 years as they can treat TNC so much better now but.... Statistics are horrible! Positive mental attitude, holding on (tight) to the fact they kept saying 'this is treatable'. When will you be getting your MRI results back? They've said it's a 2 week wait for me.... Have to have a genetic test done in the meantime.

Sorry you're having to go through this too.... I wouldn't wish this on anyone! 

I get mine today - both MRI and CT.  Not looking forward to it.  So scared it’s already spread.  I’ve given my blood for testing for the BRCA1 gene but have no family history of breast cancer so I’m pretty sure that door is closed.  Google is horrendous and makes you feel like giving up especially if it’s spread as survival statistics are small.  I went to the GP for meds to help me through this stage as I was feeling so distraught.  I also wouldn’t wish this on anyone.  You hear so much positive news on breast cancer until you read up on TNBC ! 
xx

Sending you all the positive thoughts and love! Really hope you have good news that's it's stayed put and that chemo can blast the hell out of it. 

My partner seems to be oblivious to the TNBC stats... He keeps telling family members it's a really common, really treatable cancer and I'll be fine in a year! When the opposite is actually true... We've two young boys so have to believe it will all be ok! 

Really hope you get good news today! 

Hi. Sal and LRT. I was diagnosed with triple negative BC last September which had also gone to my nymph node. At the moment for you everything is unbelievably scary and you're thinking if they won't tell me it must be bad. That's not always the case, it might just be that full results aren't back yet. Take advantage of the breast care team with any questions you may have if you're worried or unsure. From my experience no question is too small or daft. They want you as healthy a patient both physically and mentally whilst going through this nightmare so will do everything they can to help you. My attitude through the whole thing has been "Cancer picked the wrong bitch to play with"  (got the tshirt to prove it thanks to my pal). If there is a Maggies near you, pop in and have a chat, 

I am not at the end of my journey yet. I won't lie and say it was easy but I have competed chemo, mastectomy and a couple of minor ops to get a hickman in and out but I've done it. There's been days when I cried non -stop and days when I've realised I'm a lot stronger than i knew. Last step, hopefully, is radiotherapy which starts 3rd July. 

You will find the exaggerated scary pictures in your head are not the reality. Take each day as it comes and remember "Not why me?? It's Try me!" Xx

Thank you mother of cats... I think talking to people who have been through it/ going through it is the better option than Google. Pleased to hear you're nearing the end of your journey. I think when you hear it's gone to your lymph node you automatically think the worst. Just wanted to be told a grade/stage so I knew where I was at. 

Will try to take on your brilliant attitude to it.... Just want to get going, zap the hell out of it and to be honest get rid of my boobs to cut the chances of it in the future. 

My partner also is talking very positively.  I think he wants me to be positive but it’s really hard.  My children are all older thankfully.  I’ve just lost my dad to cancer so this is all a bit raw for me.  They thought my cancer was 1cm but contrast mammogram showed it’s over 2cm.  Not good ! 

I've done a couple of things which to an outsider might seem a bit airy fairy but gave me a focus and shaved off the scary bits.... kind of

1. I named my tumour Terry. This meant when giving updates to friends etc it was Terry is half gone. Terry has now bogged off...cleaning up the vocab for a public site.

2. I bought a charm bracelet and then with every step got a new charm, Got a September charm for diagnosis, scissors when I got my hair cut prior to chemo etc. Another charm after every chemo. 2 weeks ago my partner got me a 50th charm because unfortunately Terry stuffed up my birthday plans. 

3. Get a notebook /journal and jot down how you are doing. No-one needs to see it.

When this horrible journey ends I will have my bracelet and on my bad days I was able to look back and see how much I'd already gone through and managed.

I was diagnosed with triple neg BC in August 22. I found the results of the MRI scan and bone scan so reassuring as they showed that it had not spread anywhere else. My coping mechanism was to NOT think about it, whereas my husband googled for information.

I had chemo, then surgery, and awaiting radiotherapy.

Everything went well and I am totally cancer free. Please, try to take each day at a time, don't panic, remember to ask questions when you get the chance. Chemo drugs are amazing, and so was my cancer team. 

That made me smile Mother of cats! You named your tumour. I have three! Will have to have a think