I have only been taking this for 5 days but it as completely knocked me for six. No diarrhoea but very queasy. I really don't see any way I could stay on it for a year. Is there any hope thing will improve?
Neratanib can be a tough treatment. I was offered it and did a lot of research before deciding whether or not to go ahead. There is a support group on Facebook that I joined and I found really helpful.The group is very honest, open and supportive.
I decided it wasn't for me in the end. It was just as we were coming out of second lockdown. I was desperate to get some normality back in my life and couldn't bear the thought of being unwell for so long.
