Letrozole

  • 4 replies
  • 282 subscribers
  • 557 views

Hi I’m new to this forum and not very good online, computers weren’t invented when I was at school. 
I had breast cancer surgery in September 22, a lumpectomy and 1 lymph node removed- which was clear. Oestrogen receptor positive 
I was then given Letrozole followed by 5 days of radiotherapy 6 weeks later.  
My growth was only 5mm and was found at my routine mammogram, I have been very fortunate. 
My problem is the side effects of the Letrozole which I’m finding very difficult to deal with. 
I am at present on a 6 week break from the Letrozole and have to decide what I want to do next. 
I know there are another 2 aromatase inhibitors but they have the exact same ingredients. 
It has also been mentioned the different brands, and coatings HELP.

I know no one can tell me what to do, but any advice or your experiences would really be appreciated. 
TIA

  • Hello BonnieLucy, I was also prescribed Letrozole for 5 years and have been taking it for a month now. I’ve had some of the side affects, a UTI, something I have not had for many many years. Bone pain, my hair is also getting very thin. 
    I get pins and needles in my fingers mainly at night and I don’t sleep very well either.

    I am going to persevere with it for a little longer and then will speak to my Oncologist to see if there is anything better.

    I definitely feel that I cannot stay on it for 5 years with the side affects that I am currently getting.

    Maybe speak with your Oncologist or BC nurses, they may be able to advise you. Good luck x

  • Hi  Valleyside, 

    Thank you very much for your reply.   
    I hope you get rid of your side effects soon, from your response I see you have been on Letrozole for 1 month. 
    I was told by a nurse that it takes 3 months to get ifully in to your system.  
    I have been taking it for 5 months 
    I don’t think it’s the one for me. 
    I have spoken to my surgeon who has told me to take a break from it for 6 weeks, we will then decide what the next step will be. 
    All the best xx

  • Hi I tried letrozole for about 6 months I was then put on aromasin (exemestane) with some marginal improvement.

    Good luck x

  • Thank you for your reply. I think I may have to go down that route. xx