Hello, me again.
I had surgery on 11th Jan for DCIS. Two days ago, I was told the margins were not clear and also that the 5mm DCIS was actually 24mm. I thought I was doing well with my recovery, and now I need to go through it all over again ! I stayed strong so far for the sake of my family (I ‘m 48 with 2 young adults living at home) but I m finding it hard to cope with that news…
It isn’t the news you wanted but it is better to find out now, get the second op done and then you will know the cancer is gone. I think that the measurements can sometimes vary.Mine was larger than it showed on scan. None of us want more surgery but you will get through this. It is harder when you have a young family but your team will do everything to make sure that you are going to beat this horrible disease. Good luck.
Hi Mano I also had the same and had a 2nd surgery. However, this wasn’t anywhere near as bad as the first. They use the same incision so no extra scarring. I don’t know if you had lymph node removal but I found that part of the op most painful. So other than it being a little sore for a few days I found it quite easy to deal with. Good luck!
Hi Mano, I had my second op last week due to the margins, mine had also grown to 24mm from the initial 14mm that they advised. I was also worried about the op as the 1st one took a few weeks to recover from mainly due to the removal of lymph nodes which I found more painful than the lumpectomy. Thankfully the second op was quicker and they went in through the same place. Other than being a little sore I've been fine. Hopefully you will be fine too and this may put your mind at rest. Stay strong and try to look at the positives, they are making sure they get good clear margins to ensure the cancer is gone. Xx
Hi, pathology results can be a knock back. But its quite common for this to happen, and you certainly aren’t alone. I remember my GP telling me when I was on chemo (pre surgery) that treatment can change course after surgery, as they never really know what they are dealing with until they operate. How true (for me) that was. I didn’t need more surgery, but I had to have further investigations, which thankfully were clear. But I remember breaking down infront of the BCN afterwards. It’s such a kick in the teeth after everything else. One of my friends had to have second surgery because of the margins - like others have written, she said that It wasn’t as bad as the first surgery.
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