Trodelvy Cycles

Hi Sarah sorry no-one has replied, this should get you bumped up to the top in the hope that you get relevant answers.  Love from Ann

You can use the search function to find discussions on it ->

https://community.macmillan.org.uk/search?q=Trodelvy&category=

Looks like :Bill_ 's wife is on it.  Perhaps he might see this tag and jump in, although it was a few months back he posted.

Yes my wife was on Trodelvy. The side effects were mild for her but they did reduce to dosage to 80% due to low blood count. The drug worked for a couple of months to the surprise of the oncologist as the cancer didn't respond to other chemo but unfortunately my wife's cancer was very aggressive and she passed away peacefully in October. 

Oh, I am so sorry to read this Bill_ I hope you are coping ok.

Hello Bill, thank you for taking the time to reply to me. I am so very sorry for your wife (and you of course). At least she passed away peacefully which is all some of us can hope for. I hope you are doing ok. Sarah 

Hi Ann - thank you for taking the time to reply to me - it was a bit of a long shot question so I am (once again) so very grateful for other peoples advice and help on this site. Sarah x

Hi Sarah. I have just started Trodelvy so I may not be able to help answer any questions but did want to share my experience. I unfortunately have been really suffering this week (my week off) with severe stomach cramps and severe diarrhoea. The way that I am feeling right now, I don’t know if I could handle another cycle never mind a delayed cycle. 

Hi Bev, I am so sorry to hear you are struggling with Trodelvy and hope your symptoms ease soon. I did go to a 4 week cycle (which I'm still on) and the extra week really helped the balance for me. Saying that I am on week 3 this week and am also suffering more than usual this cycle. Sending you lots of good wishes you start to turn the corner very soon. x

Thank you.  What way are you being affected this week? Have you noticed any trends from week 1 through to week 3? I seem to have had a full week of cramps since day 8 infusion.

Bev x

Hi Bev, I am on cycle 15 at the moment and I have to admit, although my first cycle was tough, I have been pretty lucky with the level of my side effects. I took a break of 2 months before my current cycle so I think (but I don't know) that my increase in fatigue and diarrhoea this cycle maybe because of that. My main trend is I'm 'ok' between days 1 and 8 but the week after day 8 is my worst for fatigue and diarrhoea so if you can do a 4 week cycle that works for me as then there is a week of feeling reasonably ok. Hope that is helpful - stay positive!! x