Fibrosis After Radiotherapy

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Has anyone else experienced this? I've tried searching the forums, but can't find much about it. I had my radiotherapy in early June. It went well - I had just 5 treatments and didn't have any changes to my skin at all, which surprised me. My breast did feel a bit tender, but it was just a little discomfort. In the last few weeks, I'm having trouble raising my arm. The area at the front of my shoulder, where the breast meets my armpit is very tender, and extremely tight. The BCN recommended starting the post-op exercises again, but they've made no difference at all so I spoke to her on Friday again and she's arranging for me to be seen in clinic. All I've been able to find out is that it often starts months or years after radiotherapy, but not a lot more than that.

  • Hi Shegar,  I am happy to hear that you have an appointment to be seen in clinic.  The exercises recommended sound like a good plan and should not hurt you.  I am sending you a good link that is easy to read about radiation fibrosis and you can search on YouTube and there are reputable breast physical therapists that talk about it and treatments too.  Here is the link https://www.verywellhealth.com/breast-fibrosis-from-radiation-430057

    It is so important to be aware of our bodies and changes do treatment can be started early. 
    Take care and whether you have 5 treatments or more there still is a risk. 
    Barbara

    Barbara 

  • Thank you for the link. That was much more informative than anything else I've found. I never thought to look on YouTube, but will have a look :)

  • Hi Shegar,  love YouTube and have learned so much as they have conferences etc. Excellent learning tool and I will send you the link too for breast massage in case they mention it at your visit.  Here it is.  Got this from YouTube and do great.  Macmillan gave it their approval too.

    https://m.youtube.com/watch?v=uRlGXeOcJno

    Take care.

    Barbara

    Barbara 

  • Made typo.  Suppose to be breast massage not mention.  
    Barbara

    Barbara 

  • Barbara, you are so amazing with your knowledge and wonderful advice. Just wanted to acknowledge that as I and many others get so much info from you. Thank you!Heart

    E️vajean x

  • Thank you - that's really useful. I'll dfo a deep dive on YT tomorrow.

  • Hi Evajean,  thank you very much for your kind words and it warms my heart to help if I can.  It is a two way street as I am always learning from all the beautiful and special women on this site.  
    My surgeon probably got tired as I was always him question after question but he was patient with me.  
    It is so difficult to be diagnosed with cancer and support from people who really get it is vital to recovery.

    Take care, 

    Barbara

    Barbara 

  • Hi , I developed fibrosis in the chest wall, and it was ‘particularly dense on the mastectomy line’ according to the lymphodoema clinic. I also had lymphodoema in the chest wall and axillary area, but those exercises that you mention  kept it down, and stopped it from going into the arm. I was prescribed a ‘comfi band’ - a stiff ribbed ‘boob tube’, which really is comfy and provides relief. As you move around, the ribs massage the fibrosis to break it down. For me, it worked, and that stiffness and tightness disappeared. Hope that’s helpful x 

  • Thank you :) I've got an appointment at the clinic tomorrow morning, I think with the surgeon, so should know more then. I've had a frozen shoulder before, and did wonder if I was getting it again, but this feels very different. Everything I've found so far, says it's important to get on top of it early. I'm hoping that as it's only been a few weeks, I can nip it in the bud.