Hello,
I have posted on here prior about my mum's cancer. She currently has stage 3 locally advanced triple negative breast cancer with a wound.
We've been undergoing chemotherapy for the last 8 months in which time the tumor has gone from the size of a watermelon to the size of a small orange. The exterior wound has also showed signs of shrinking.
What my concern is really is in relation to surgery. As we have done more than the average amount of chemotherapy, tumour is in an operable state, the hospital have absolutely no plans whatsoever to do surgery yet. We had one appointment with a surgeon (after us requesting several times) only to be given false hope, poo pooed by the surgeon and "yeah maybe one day" type of attitude, even though it's operable. I feel this lackluster attitude is compromising my mum's treatment and overall health due to the fact that she's had so much chemotherapy her body can't take much more - it's time for surgery. Lackluster attitude in Clatterbridge Liverpool so far has been a reoccurring theme and the communication between themselves is something I've never seen before. They did at one point put her on the wrong chemo in which time her cancer gained ground. We had to request the correct chemo for them to stop this.
I am unsure what to do at this point, we are desperate for them to just get the surgery done but I feel we are dealing with dismissal and negligence. I am genuinely thinking about getting a solicitor involved, but is this really what it must take for them to finally do the surgery? Any advice would be highly appreciated.
As long as your mum has the tumour, they can see that the chemo is working, If they're worried about potential spread, then they may want to see more of a response to the chemo than the size being operable so that they can be sure that any stray cells are being dealt with everywhere in her body. With triple negative, there' aren't many post-operative options as I understand it,so watching it shrink is probably the best tool they have just now to know their treatment is working. If the chemo stops working, they can try another one. Once the tumour is out, there will be more of an element of chance to treatment.
I had chemo before surgery and although a different type and size (hormone positive and almost 4cm), they did say to me that they like doing chemo before surgery more and more now because they can see whether it is working.
You could write to PALS about the wrong type of surgery beinf given. And you could possibly ask to be transferred to another hospital but o believe Clatterbridge is one of the best so you’d really have to research and be sure. Maybe ask for another meeting and why exactly they won’t operate to put your mind at rest as they will discuss her case at MDT so several people are obviously making this decision for a reason. Best of luck xx
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