Diagnosed with E positive BC on 7/4 after biopsy taken on 30/3. Was told on the 7th April - they were waiting on the HER result (would be another week) oh and I'd need a CT scan - despite this follow up was booked for 21/4/22. Anyhow - no contact regarding CT scan so called on 14/4 to be told it would unlikely happen before the 21/4 as urgent CT scan in my area is a 3 week wait. However the BCN I spoke with said she would call me on the following Tuesday to confirm if my appointment for 21/4 would go ahead. No call received on that Tuesday - I chased it on the Wednesday and was told due to my surgeon being off and no CT scan done the 21/4 appointment would be cancelled - but I was rebooked in for 28/4. Anyway - got home from a cheeky weekend in West Wales to a letter saying CT scan booked for 6pm on 28/4 - my appointment with the surgeon was booked for 30. Rang to confirm appointment with Surgeon still going ahead was told yes. Got a call from BCN about 4 o'clock today - appointment with Surgeon for tomorrow cancelled as they didn't have enough tissue from the biopsy to complete HER check - the HER check that takes 2 weeks to report back apparently. Feel like the report has sat on someones' desk for a fortnight and they had a quick look today ahead of MDT and saw the results were inconclusive. Anyway - further biopsy booked for 4/5 ( my birthday - what a treat!) and when i said I wasnt happy as I'd be waiting 2 weeks for that to come back - and I was told they could see me the next day in clinic - when I asked would you be able to give me my treatment plan - was told no - but they could tell me my options - I dont want options - just want to be told its Chemo - Surgery - Radio or Surgery - Chemo - Radio (was told if HER positive that given the size of the lump- they would start with Chemo). Was quite forthright and told BCN I would not be attending any appointments that didn't move my case forward. Live in Wales - suppose to start treatment within 62 days of GP referral or 21 days of treatment plan being agreed. Cant see the target being hit in my case to be honest.
