Whole brain radiotherapy

FormerMember
FormerMember
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Hi

Has anyone out there had Whole Brain Radiotherapy for Brain mets?

I was diagnosed with the brain mets in November, and had 10 sessions of Radiotherapy. It wasn't a good experience and I still have some side effects including headaches and a dry mouth but mainly anxiety now. I'm normally really positive but this latest diagnosis has knocked me for six.

I also have sternum, spine and liver mets and am also having chemo called Kadcyla, other than that I'm in perfect health!!!!!! 

  • So sorry to hear this. Sending hugs  xx

  • other than that I'm in perfect health!!!!!! 

    You made me chuckle. I keep saying exactly the same thing about my own cancer! My blood pressure, heart rate, saturation and temperature are always at a range a healthy 18-year old would be proud of. So, I keep telling them.....

    I have no experience with what you are describing, but if I were faced with that, I would ask my oncologist very closely about what he or she were hoping to achieve vs the possible risks and side effects, and find out in advance how I would be monitored, at what intervals, and anything else I might consider I needed to know, including, periodically, asking about any new treatments that have come out or are about to come out.