Oncologist called it a day with chemo

FormerMember
FormerMember
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Had to go see Oncologist over concerns with side effects on tues. I came away with decision that they were reducing chemo by 20% but she was also getting a 2nd opinion on this. I had phone call yesterday to say they were stopping chemo due to me having neuropathy on both occasions with EC the 2nd time was worse than the 1st. I'm abit upset about it as I feel I lost all my hair for nothing. Has this happened to anyone else. I have to go back on 26th to see them. Delayed having picc line taken out de to household coming down with Covid.just feel so fed up x

  • FormerMember
    FormerMember

    I do hope that they can find a suitable treatment for you soon, there are so many different types I believe. If you need to ask questions, ask away or pester the 'team' if you must especially if time seems to pass without hearing anything. I do hope you hear something positive soon. Take one day at a time as best you can and you are in my thoughts and prayers. Gentle hug.

  • FormerMember
    FormerMember in reply to FormerMember

    Thankyou, they did say any other chemo treatment wouldn't be beneficial I was boarderline Chemo with the oncotype test score with clear margins and no lymph node activity. Purely come down to weighing up the risk and they feel I should stop the treatment. Neuropathy is not something the EC should cause so its a new one on them. I will be going in to have chats about the tamoxifen as that caused headaches so will try an alternative. I think then it's straight onto radiotherapy. 

  • I’m sorry that’s tough but please don’t feel you wasted your time or lost your hair for nothing, both those Chemo’s will have worked to increase your chances, you don’t have to complete the course to give you a benefit. On the plus side you’ll get your hair back a bit quicker than you were expecting Heart x

  • FormerMember
    FormerMember in reply to Anna12345

    Thanks, yes thats 1 positive I can look at at least. X

  • I had my dose reduced to 80% on my 3rd round and then had to stop after the 4th as the treatment was making me extremely unwell. We discussed the stats around continuing against the risks and the potential gain was negligible, so I felt very reassured and, frankly, glad to stop the chemo!

    I found losing my hair the most traumatic part of having cancer but, just a few months down the line, it’s growing back really well & I’m feeling more like ‘myself’ again. Hang in there - it’s grim but it sounds like you’ve dealt with the worst of it. Take care.

  • FormerMember
    FormerMember in reply to Handbag lover

    Most traumatic bit for me too! I'm still really struggling to cope if I'm honest. Haven't had the best of luck with wigs either. I have a petite size head options are limited from what I've seen. Hope you are doing well, have they said what next steps are for you? 

  • Yes - after cutting the chemo short in May I then went on to 20 sessions of radiotherapy, which finished in July. I found that much easier than the chemo! Next step is to meet my surgeon again next month to talk about a possible fat transfer. Good luck to you!

  • FormerMember
    FormerMember in reply to Handbag lover

    My journey sounds the same radiotherapy and then reconstruction where lump was removed. Hope all goes well for you.