Hi Everyone, I am new to the site although not new to beast cancer. 5 years on Tamoxifen , cancer returned now almost 5 years on Examastane .
I coped with the bone pain and other not nice side effects but for the past year I have had severe bouts of cystitis every month lasting 3-7 days. November last year I had 3 attacks in one month, 2 in December and already into first this month. I have been suggested to by my BC nurse that I could be getting it because I am now stripped of oestrogen. One of the side effects from Exemastane so I read is cystitis. My questions are, is anyone else suffering the same horrid problem and is it safe to eat oestrogen making food ? Wishing you all well and thank you
Hello Fireplace
Sorry to hear that you are having such a pesky time with the cystitis. I am not speaking as a medically qualified person, but to a lay person it sounds like your oestrogen inhibitors might well be playing into this. I am sure that I read somewhere that we should avoid things like lavender oil which contains phyto-oesrogen, so I don't think I would be consuming anything that is likely to make oestrogen once consumed it. I read on here that a lot of ER positive ladies avoid all dairy so that they are not taking in any oestrogen.
However, you would be best tomask your onc team.
All the best
WallyDug
Hi , Thank you so very much. I am so pleased you have found relief and I will certainly look into all you have listed. I will check out what the doc will prescribe tomorrow .
Your BC nurse may have samples to try,mine did.
That`s interesting thank you. My next checkup is not until May but will look into it.
Give them a ring,my samples came in the post after a telephone consultation.
I am totally deaf so can`t ring but I will email them , thank you .
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