Hello,
I have read some great things about this clinic and have had a good look through the website.
Does anyone have any experience or thoughts they are happy to share? I also wondered about the cost of the the medications they may recommend. I can see the initial consultation costs etc but it would be good to have a rough estimate of ongoing costs for the drugs.
Many thanks in advance.
xx
Hi Bix a Boo welcome to the forum. This does look like a private Cancer service and whilst I understnd that everyone has choices, we would not encourage people to take anything that is not recommended by their Cancer team. Many of these drugs can interfere with treatment and you also have two separate treatment plans going with neither speaking directly to each other.
Thats just my thoughts but it will be interesting to hear what others think?
The quote below is from their website:
"The Care Oncology Clinic is undertaking a study into and provides cancer treatments that may complement and enhance standard of care therapy. Treating your cancer in combination with your existing treatment may increase its effects. The medications used are well understood, with low levels of side effects, offering an acceptable quality of life.
I agree with Granny59. I wouldn't be taking anything that wasn't prescribed by, or recommended by, my onc or GP. I would be wanting my meds to be recommended by NICE or, if they were new drugs under clinical trail, I would want that they were part of a fully Ethically Approved and regulated clinical trial that was being carried out in partnership with an NHS cancer centre.
Not a reflection on this site you are mentioning, but I am just saying 'There are a lot of snake-oil salesmen out there, just waiting for the main chance to exploit the vulnerable' and this had been the case across time. Be wary, be very wary.
WallyDug
It's a private clinic run by consultants working in major London hospitals like The Royal Marsden and St Thomas and aimed at looking at how off-label drugs can help fight cancer. Drug companies won't pay for trials of these drugs as there is no profit for them in it. Their results will be gathered and used to show if they help, and to an extent they can. Think of loratadine, asprin and melatonin, all used for other things but have shown to slightly reduce recurrence in ER+ breast cancer. Asprin is now in trials at different doses, and my NHS oncologist asked last year if I was interested in taking part.
If you are interested maybe do more research into the drugs and doctors. Some drugs are prescription only, and it would be advisable to have blood tests with some after a while, which would show if your liver is ok. Personally I'd be tempted if stage 3 or stage 4, but not with stage 2 with NED. Xx
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