If taking Letrozole can supplements help with side effects.

FormerMember
FormerMember
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I started to take Letrozole in February they were the cipla brand. I take it in the evening.

Side effects are hot flushes then cold chills plus tiredness. Also hip pain and the top of my thighs really ache.

Does anyone take vitamins or some type of supplement help with the side effects.

Will it be better to take Letrozole in the morning.

  • FormerMember
    FormerMember

    Hi I take mine about midday,after trying both night and morning.I take magnesium,glucosamine with chondroitin,cod liver oil ,loratidine and prescribed calcium and vit D.

    The bone pain has now gone,flushes ok.Energy back.Side effects wear off over time.

    Try different makes to see which brand suits you.

      Good luck

  • Hi there, 

    I was given the Cipla brand at the hospital and found that they really affected my joints badly.  I swapped to Accord, which was a bit better.  It might be worth experimenting with different brands.  I've also tried Sandoz which was in Spain and OK, and my doctor treated me to Femara,  which isn't usually available on the NHS but they made me really dizzy despite many finding them the best!

    “Remember to look up at the stars and not down at your feet.  Stephen Hawking,
  • Hi, I took Letrozole for 6 months and have now changed to Exemestane but if anything I am stiffer and ache more plus weight piling on, despite making myself do cardio and walking every day. I will try your supplements to see if they help. Not sure about loratadine and am wondering why you take this?

    I notice people talking about different brands, does this make a difference?  Is there a brand of Exemestane I should ask for or should I go back to Letrozole but ask for a specific brand?

    I don't find that my oncologist offers any advice - although as appointments are now over the phone it makes it more difficult especially when it is a doctor I haven't met. 

    I am feeling pretty desperate and quite down I know I am 70 but am sluggish, tired (although I don't sleep).  I am doing nothing and apart from my daily walk which I make myself do I don't feel like going anywhere despite the easing of lockdown. Up until 2 years ago, I was working and despite some osteoarthritis was comparatively active and a glass half full type even through chemo but not now. Any advice would be very welcome

    Many thanks - hope I don't sound too much like a moaning Myrtle

  • I've started taking exemestane rather than letrozole (I take it in the morning) but I think side effects of all AIs are pretty similar. I was already taking magnesium with calcium and Vitamin D (with vitamin K to help absorption). I was taking starflower oil prior to diagnosis but switched to hemp oil. If I take that the hemp oil the evening, I don't get the sore hips overnight. I still wake up stiff but moving around soon loosens me off. I take sage tablets (make sure they aren't Spanish sage as that acts as an oestrogen) for the flushes and night sweats plus a chillax pillow. Alcohol definitely makes the flushes/sweats worse. I find them pretty manageable now and getting easier as time goes on, but I am mid-40s and was put into a medical menopause so my symptoms were pretty intense at first, back in October.

    Moving/being active really gets rid of any aches and pains for me though my hands and feet can be mildly sore all day. My feet are really sore for the first few steps after I've been sitting for a while but loosen off quickly. I am back running and the thought of it is never great but as soon as I'm out, I'm not sore any more.

  • FormerMember
    FormerMember in reply to Rozalia

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    Re survivalship.Cancer flourishes in inflammatory conditions, the antihistamine helps suppress it.It was an incidental finding of large numbers of women that those taking it survived longer.