Grade 3 invasive lobular diagnosed today

Hello 

Oh I’m so sorry this has happened to you. It is quite a shock a d takes time to process. The early stage you’re at is definitely one of the worst a d most folk on here agree it gets easier as you start having treatment. It’s like a conveyer belt of things we have to go through to reach the end point.

I was diagnosed with grade 2 lobular BC in October. I’m almost at the end of my chemo 4 x EC and 3 x docetaxel , pertuzumab and trastuzumab. These are because I’m HER2 positive. I’m having a mastectomy then radiotherapy. I believe lobular is less responsive to chemo so please ask your consultant about that (I didn’t know this at the time).

However the consultants and Oncologists really will want you to have everything possible to beat this.

I hope that you have people around you that you can confide in? I have three friends who have all had BC and without them I wouldn’t be as okay as I am now. I lost a lot of weight from the anxiety of the diagnosis. It is so very hard but you can do this, we are stronger than we think.

Please message me if I can help in any way. Sending all my positivity your way. And use this forum to learn and get support. Folk here are great and have all walked the path before you, or can do it beside you. X

Thank you very much for your lovely message. Most my family have died sadly, times like this that you want your mum so her loss feels even more today. I do have a husband and a brother and sister in law who live close and my sister lives over 6 hours away. I dont know anyone who has been through BC before. Im glad that your at the end of your chemo and hope everything else goes well for you x 

Ooh yes that is rubbish. Im so sorry. I’m 49 and have lost both my parents. So I do understand.

If you want you can DM me and I can be someone you can talk to? I have a sister who is fantastic but sometimes I find I need someone who has gone through this to really be honest with rather than my family. You must do whatever is best for you. There is also a BC forum on here for folk under 50 which might be good for you. If you search under lobular BC you’ll be able to see other people who are the same as you mentioned and reading peoples profiles does help too. We’re all here to support you and each other x 

I had lobular breast cancer with 3 lumps - 44mm, 30mm and 13mm. Mine was er/pr+ and HER2-. I also had lymph node involvement. I had a mastectomy with 14 lymph nodes removed (4 were positive) and am due to start radiotherapy next week.  My oncologist said that the side effects of chemo far outweighed the benefits so I am not having chemo.

Hello!

I'm exactly the same as you except mine is 6cm in breast and also in lymph nodes.  I'm on Letrozole (since Feb 16th) and go back Tuesday as oncologist putting me on another tablet - funny name placicbib???..this combination stops cancer spreading and is to shrink tumours. Like you, it's a shock isn't it? It was standard mammogram,  recall and biopsies there and then, following week surgeon told me it was cancer. Blood tests for liver and kidney check then CT scan, thankfully that showed it wasn't anywhere else and hey presto!! I was on this journey. I'm ok-as you will be- I don't know whathappens after combining these tablets,  chemo then Mastectomy? I'm not really sure as I wanted to do this in bitesize chunks, as opposed to knowing everything  ahead...too much at the moment, I'd rather trust my oncologist and learn more each visit.

Good luck, all we can do is get on with it and hopefully we will be stronger for this. I want to be a role model for my family and friends to show that breast cancer is treatable and I am coming out the other side fit and healthy - as I'm sure will you. So if they ever get it they will know it's not the end of the world.

Sending you my  love, we will both get through this. x

Thank you so much, thats very kind of you. Oh i might have a look on that forum too then.  I think its all about support isnt it. x 

Im sorry your also going through this. What grade was yours? We haven't got that far yet with treatments apart from talking about me going on Tamoxifen. x 

Thank you, hearing positive stories really does help. Im having MRI then i think they said something about putting dye in the nodes... 99% chance that im having mastectomy cos the lumps so big, im being sent to the queen victoria hospital as my local one isnt doing the breast ops at the mo. Yes you def have to do what ever suits you and if thats bits at a time then thats what you do. Sending love back x 

They said it was grade 2. I think the only difference between us is that you have one large lump while I had 3 smaller lumps.  They knew from the start I had lymph node involvement because it showed up on ultrasound and they biopsied it when they did my lumps.  As I have already gone through the menopause I am on Anastrozole which stops my body producing oestrogen.  There is an awful lot of waiting involved while they find out exactly what they are dealing with and create a tailored treatment plan for you.  Once that is done it is all go, go, go.  Fingers crossed it hasn't spread to your nodes and treatment can be fairly straight forward.

Thank you, yes I think In some ways the waiting is worse. Because I have agoraphobia the cancer nurse has put on my card that I would prefer results over the phone so it’s not as stressful for me. 
how are you feeling in yourself. X